lumbar puncture procedure - headache still after 3 weeks

I had mine 3 weeks ago Tuesday just gone and I am definitely feeling better but not 100% the main thing I can advise is drink lots of caffeine!!

Hi Hannah, how are you now? I'm at Day 7 post lumbar puncture. Much better than days 1-4 but really tired of not being able to do much! I'm thinking about just getting the blood patch to speed up healing (hopefully). Did you ever get the blood patch? If not, how long in total did it take you to heal? Do you feel that you've fully recovered? I'm worried about long lasting effects (continued slow leak of csf)

I had same procedure in October last year ain't been same since at neuroglist tomorrow

Oh you're joking

What have you had done since? And scans etc?

Yeah all clear

Same here it's just not fair I'm so fed up now and on anti depressants because of it

Are you dizzy all of the time and fuzzy headed?

Are u on meds?

I was on amtrypline for the headaches. But I had a bad time on them.since then I had pain stabbing burning on left side of head. I'm off to neuroglist tomorrow. Ain't leaving till get it sorted

I'm sure you will be ok.go back to doctors if you not any better. U should not have to put up with it. Hope you sort it out soon best of luck and let me know how you get on.

Cheers u too

I've had MRI and ct privately and in NHS by nurologist then referred to ent who basically said he don't know what to do!

I've asked him for a nerve test as I think they damaged my nerves after putting a hole in my spinal fluid and I've also got a meeting with head anethiatist at the hospital on Tuesday

I've explored every avenue but still not getting answers and I'm just so scared

I'm on amitriptylin too and this week diazepam which helps a great deal at least I can half function but the docs won't prescribe any more than a weeks worth

I get burning sensations from my neck into my head and from my bottom right down to my feet

They've deffo damaged something

I think u might be right there. Cause I wasn't this ill before I had lumber puncture. I tell them that tomorrow. I sometimes feel I'm having a stroke

Do u get burning on left side of head and dizziness

I dont understand why they wouldn't do the blood patch to you 11weeks ago ?!, when they already done the damage in the first place... Its scaring me as well, just knowing this could last months. 😢

If they told me it'll go in a few months then I'd take that but I could be like this for life which is terrifying me

I'm on maternity but bk in October at this rate I'd never be able to work again

That would seriously suck, I have to go back to work in June, thats in 8 weeks. This better be resolved way before then..

I'm sure you've tried everything to make it go away too huh?! My friend was pretty much giving me a deep tissue pressure point massage in my neck, behind my ears and it helped a lot.. but of course it hurts again now.. =/

Yes I've tried absolutely everything

Cranial therapy too which like u haleped at first but now nothing

I'm at the end of my tether and I'm so friggin scared

How on earth can they do this to us and not take responsibility for it

I think it's woes as they can't physically see our illness whereas if we had a broken leg it's Ben much easier to diagnose

Life is just so poo when it should Ben the best time of my life

I've waited 15 years for my 2 boys, both ivf and now I'm like this

I hate the person I've become and I hate the man who did this to me

Just do the blood patch*

I think my neck pain went away after the second blood patch last night, when I was rushed to emergency room with extremely high blood pressure and the pain was just too much to handle.

I say just do it!

So how many weeks post natal are u?

I just had my son on Friday, only been 4 days! I couldn't imagine going on with the pain for as long as you . 😢

Two blood patches since Saturday and hopeful the second one worked!

How cOme u had 2? Did the first one go wrong? Or just didn't work? How long before you know it works

The first failed, after 12 hours the pain was so much worse. Had to do the second one and was told to lay down for 24 hours straight. Woke up this morning, still got pains in my back in between my shoulder blades, not as much in my neck but I have a feeling its gonna come back =/

so here I am Day 6 after giving birth to my son.

Oh Hun I feel for you this is horrendous

I totally understand

I was admitted on 2 separate occasions after giving birth

This is why I refused it in the first place but now wishing I had it as dizziness is so unpleasant

Are you feeling dizzy?? And will they do it again if this hadn't worked

I'm praying for you that it will and you can be a proper mummy like you wish to be it's so unfair

Thank you* I agree * this really sux .

How are you?

My blood pressure went super high so they admitted me for 5 days thinking it was some kind of preeclampsia thing, they didn't realize the pain in my neck was so bad that it made my blood pressure high, so they filled my lungs with fluid (unnecessary) and I had to stay there for 5 days . went home with the same pain I went there with and no pain relief =/.

But I drank Lipton Tea (2 packets at a time) for 2 mornings and called my stupid doctors office for some pain meds and one morning I woke up with No pain..

So I guess since I was admitted, all I did was lay flat, with either NO pillow or the flattest pillow and I guess it just sealed back up.

So after two blood patches and laying flat as possible for days and days, caffeine might have helped and 14 days the pain has stopped.

Still recommend getting the blood patch.

Would you say if you was me to get it? My head is battered with "shall I Sharnt I"

The hospital have left it up to me

I'm worried about the long term effects (if any) if I don't get it

But now I'm 14 weeks post partum so would it still work?

14 weeks with the spinal headache is unimaginable =/

I would have gotten the blood patch so long ago because all they do is take ur own blood and put it in the hole where ur epidural is and it is supposed to help clot and seal the hole. It doesn't hurt at all, easier than epidural itself and maybe since I got two in a two week span it pushed for a sooner recovery.

I have spoken with so many ladies that it happened to and they all went from a day of pain up to months of pain, but the blood patch helped all of them* so yes I would say do it*

I've been on diazepam and that's taken the dizziness away so I've stopped them to see how I am

My neck is still very sore and pins and needles in my arm

The lights in shops hurt my eyes but I'm just trying to cope with it all

The headache has gone but my ears hurt now and again

I'm just so scared of getting it done incase it makes me feel worse

They've offered me the patch a week today

I'm. Petrified , will I need complete bed rest after it, how long was it before u felt normal after having it