Lung transplant patient
Posted , 4 users are following.
Well, Ive had lung problems for 20 years, got a lung transplant in2006, already had HepC from the 70s (drugs), have had quite a few hospitalisations for lung infections. I had been tested for hepB , but long ago. I have had quite a few blood transfusions over the years, maybe that was it. They tested me for B and Im positive. Big time. The viral load is >170m. Ouch so then my kidneys fail and in on dialisys. The lung is slowly going away. I just got married to the love of my life in October (about the time the kidneys were dying) I guess I trying to say that I prolly have 1-2 years, but its all hanging heavy on me right now. Had to tell somebody. Oh, starting PD dialysis May 11, will be a treat not to do hemo any more! Hello you all in England~
1 like, 3 replies
helen54849 clay_00198
Posted
You have got through so much already don't you dare give up now. You will feel better once you start PD its less restrictive you do it at night when all you really do is sleep
so that leaves the day fre to do what you want, plus there aren't as many diet and fluid restrictions as heamo so you will be good to go. You have something to hang on for try not to think about stuff too far in the future live for the day cheesey I know but do it anyway. Could you have another lung transplant (i don't know about that side of things) and would you be able to a kidney transplant, as far as dialysis you can last for ages but I don't have knowladge of your other conditions sorry. Sometimes its enough to just talkl to people who are going through the same because as much as they love us unless you actually live it you have no idea (I have a lovely husband who would do anything for me ho is with me all te way and two gorgeous kids who I am very proud of). Any time you wish to off load feel free also keep us upated and take care and enjoy married life
x
sonia68053 clay_00198
Posted
I'm on P.D every night - over night. sometimes have a night off without a problem. Also have a collection of other serious health problems but I believe in the future. Every day new treatments and new discoveries are made. Every day medicine advances a little and people are able to live longer and discover a better quality of life. Stop counting down to the end of life and start valuing every moment and every good thing that you have or can experience.
There is a beautiful world out there and there are wonderful people in it. Go out with your new spouse and enjoy sharing it. I do not know how old you are, but you could have many, many years left - don't waste them worrying.
Even people you have never met care about you or they would not be sending you replies. You can take that in any way you choose: That we are all connected somehow, that we send healing thoughts, prayers, energy - whatever you like; but we do care.
clay_00198
Posted