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I've been sick since 2011. It started with mono, and from there I just got a lot worse. Have Chronic Fatigue Syndrome/ ME, Fibromyalgia, chronic vitamin D deficiency, IBS, chronic nausea, PCOS, migraines and a LOT of joint pain- just to name a few.
This year, I've gotten a lot worse- and was finally referred to a rheumatologist. I really like him, and he's been incredibly helpful, but we're still struggling on a diagnosis.
I believe I have lupus, although my ANA is negative. Two months before I got sick, I had the butterfly rash- which I've shown to my rheumatologist, and I still have a sort of scar on my face from where it was for so long. Because I wasn't sick yet in later fall of 2010, I didn't go to the doctor because I thought it was just dried skin.
My ANA is negative, but both of my tests being below .20. But my Anti-DNA test was 1.10, which some places call negative, but a lot of places use that as a positive. My rheumatologist looked at it, but also said it was negative.
My inflammation (C-reactive) is on the higher end of normal now, at 9.8 (should be under 10), but was 20 earlier this year and 9 a few months ago. He's tossed around RA, but I don't believe I fit that, and I'm also a little spectacle of the fibromyalgia diagnosis as well.
My sedimentation rate is 37, and should be 20 and under, and my C3 compliment is 171, when it should be under 157.
For reference, my Vitamin D is 4, but I cannot take Vitamin D or i get really ill.
My question: do any of you have lupus with a negative ANA, but positive for chronic inflammation in your body? I love my rheumatologist, but should I go get another opinion?
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