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I’ve had symptoms for over a year but have been humiliated by doctors.. sent to mental health specialists numerous times for anxiety.. I even go back to GP and tell them the specialist I have absolutely nothing wrong and they send me back again!!! I’m the least anxious person ever! I’m 100% sure there’s something wrong with me.
Began in October 2016 with what felt like a disgusting flu, housebound for 2 weeks but never recovered. This turned into severe fatigue in which I was made even more housebound was so so frustrated at being too tired to do anything. Joint pains began, as well as carpal tunnel. (I get these very very severely now) Symptoms subsided in January until March when I started getting seizures, this was non stop all day for several days triggered by stress. Went to doctors for seizures and they suspected a vitamin deficiency but they did no tests because severe symptoms stopped.. Yet I still get up to whole body twitching more or less every day now. Had mad symptoms every day from March until June where they stopped for the summer. Symptoms then started again early September and are still occurring now (December)
Other symptoms I can remember are: Severeee headache, constant tingling in hands and feet, awful intolerance to cold where I’d be shivering for hours after drinking a cold drink etc. Weird blood symptoms in which huge bruises come out of nowhere as in MASSIVE or lots of little ones. Sometimes huge and sometimes small bleeding I can see under my skin. Also, bleeding in stool (sorry TMI) bleeding gums. Also I get really bad hangovers in where I have blood in my vomit, also when I drink. Blood tests came back positive for low antibodies, low platelet count and ANA. But a retest for ANA came back as normal but this was when I had no symptoms whatsoever. Because of the humiliation with the mental health specialists I refrained from going GP despite how much it took over my life. Only went A&E once for really bad chest pains I had, I even didn’t go when I was crying because of severe pain in kidneys and down my legs where it felt like my kidneys were failing on me!! I actually got kicked out of my last college for my symptoms and doctors still don’t take me seriously!!!!!!
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