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First time in this forum and please excuse my spelling because I am not a native english speaker.
I have been diagnosed after changing 3 doctors with atypical Lupus (not having all the symptoms) mostly because I have positive ds DNA (240) but negative ANA,arthitis and constat joint and muscle pain! Till now I have many tendinitis in my shoulders, hands and lately even Achille tendinitis.So I suffer a lot! I have been taking methotrexate for 4,5 years but unfortunately after a liver biopsy I saw that now I also have liver fibrosis (medium stage).I also take Plaquenil for 5 years and a cortinoze injection every 3 weaks for 5 years also.My doctor proposed biological treatement but I can't take it cause I also had 2 times blatter tumor removed, so it cause them again.
I stop take methotrexate 2 monts ago because if it is the cause for the liver fibrosis maybe I can recover after 1-1,5 years if I stop taking it.
I visited the best ,well known doctor in Athens and he was furius because I took for so many years methotrexate and now he said, I should take only Medrol 4mg -once a day -and some antidepressant. He says I don't have Lupus but I am very anxius person and I keep worsing things for my health I need physical exercice to gain muscle mass!!!
What should I do in this case?I can't tell my regural doctor that I had a second opinion and I am so confuse.On the other hand no one in the family can't realise how much I suffer even though I can't get up from the bed or the sofa sometimes.Any ideas or experience with methotrexate and liver fibrosis?
Thank you for being patient with my english!
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