Lupus Questions

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Can any of you who have been diagnosed with Lupus tell me how you were diagnosed & what your symptoms are. Mine are dry mouth, dry eyes, dry lips that split on each end if I don't keep something on them (I use Biotene products), sores in my mouth, tongue sticks to roof of mouth (I'm on civimeline which helps some), weakness in arms & legs, fatigue, chronic dry cough, low grade fevers on & off every day (from 99 to 101.3). My knuckles are always very red, elbows & knees are always red, sometimes my toes are red, I have a light rash on my face but it is not a complete butterfly, it's red  under my eyes & the right side of my cheek. I have degenerative arthritis & Osteoporosis & I ache all over most days. I'm on Prednisone 10 mg - one every night. I appreciate your help. Thank you

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  • Posted

    Hi - this is celia80432. I'm sorry - I'm also on Plaquenil 100 mg every other night. The doctor prescribed it this way because when I began taking the whole 200 mg it made me vomit. I will be trying to work up eventually to 200 mg every other day & then hopefully to every day. (I take it with food & Zofran (for nausea). Thanks!
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  • Posted

    Hi I've been tested for lupus and haven't got my results yet.. But I have been investigating my systems with diseases, I know that lupus and rheumatoid and sjogren's syndrome are all connected and can bring one or the other on.. Sounds like sjogren's to me.. Hope this helps you.
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    • Posted

      Hi Mary, thanks for responding. I'm just now seeing it today. Have you gotten your diagnosis yet? Would you mind telling me what your symptoms are? I appreciate it.

      Also, if there is anyone else who has been diagnosed with Lupus, please tell me your symptoms & how you were diagnosed. Thanks so much.

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    • Posted

      My Ana test came back positive and so did my c4, getting test done for sjogren's and I guess going from there, my symptoms are insomnia, fatigue,legs hurting, twitches,spasms. Skin burning sometimes, dry mouth, dry eyes. Joints hurt, I can go on and on.
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    • Posted

      Hi Mary, thanks for your response. Do they have you on any medication yet? How are they testing you for Sjogrens? My friend had his bottom lip biopsied & that showed Sjogrens. I'm on Plaquenil & Prednisone. It is only helping a little, but I'm not at maximum dosage yet. Do you have low grade fevers (between 99 - 101.2) & sweats? Do you have have a chronic dry cough or have you had any loss of hair or a change in the texture of your hair?  I have those & they are symptoms of Lupus also. I don't have burning skin but I do have some spasms. Thanks for your help.

      i hope you start feeling better soon!

      Celia

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