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I haven't been well for 14yrs and to cut a long story short after endless appointments and tests i was given the label of m.e/cfs 4 years later. I have tried all kinds of alternative things over the years because nhs gp's aren't interested. I was fit and active and i was a postlady for 17yrs and then bam my life changed. 2 years ago i had bad vertigo so i had a brain mri which showed 3 lesions and so i was sent for a LP and evoke potential test which were negative. I saw an immunologist and i asked about Lyme and he said because i couldn't remember having a rash that i didn't have it and he wouldn't test me. I can't just sit and except m.e/cfs because i feel it's a cop out of them really not knowing what it is. I have had a few weak positives with things i.e Rheumatoid factor is always high, Epstein barr virus was reactive and antibodies but no one ever delves deeper into it. I am going to ask my GP next week to test for Lyme but not sure what to ask for. Also read that the tests aren't reliable in the uk. Any advice?
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