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So my test results for Lyme came back negative and i was told i was fine. Knowing how bad the tests are i called the centre back and asked for antibiotics just incase. just been given 1x 100mg doxycycline daily for 15days. I was bit around 6weeks ago, only experiencing mild symptoms. Could one of you guys take a quick look at the picture of my rash and let me know if its definatly Lyme. I first noticed the scar when it was about 1' before it grew to about 7'. Also do you think my doze and course seems okay. From what I can tell most ppl seem to be on a much higher doze. I would rather get a little ill from the drugs side affects than spend potentially the rest of my life suffering from Lyme.
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vicky89033 Ali888
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jennifer06801 Ali888
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That looks like EM. My understanding is (and I know there's conflicting opinions on this) when you have the EM tadh, you have Lyme, no matter the test results.
jennifer06801
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Sorry ... I went to edit that and it posted! 😜 ....when you have the EM "Rash", you have Lyme, no matter the test results. 15 days would never be long enough, and I believe it should be 200-300 mg a day (100 mg in a.m. and 100-200 mg at night, 12 hours apart). In your shoes I would start the meds asap (and take 100 mg twice a day) but request a longer period of treatment at the appropriate dosage. And you need to be treated by a LLMD (Lyme Literate Doctor), not just any physician. Consider yourself lucky that you have the rash as now you know you need to treat it and do so aggressively. Unfortunately many of us go years undiagnosed. Good luck!
Ali888
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Thanks guys, starting 2morrow I'm going to take 200mg instead of 100 and I'm also going to try contact a Lyme specialist ASAP. I will also ask my local chemist if he can increase my doze but if he is unable to do this then i will ask him to check the NICE guidelines so I can show to a doctor. I will let you know how I get on. I don't mean to sound selfish by only talking about my problems as I know many others are in real pain with this disease. Normally I would just rely on a doctors desicion but they realy don't seem to be taking this serious at all.
Ali888
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vicky89033 Ali888
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jennifer06801 Ali888
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Ali888
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Ali888
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terry62719 Ali888
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Doctors say they don't know what's wrong with me but I believe I have lymmes desease in me doctors have tested me for it but say test was negative I've been tested for ms. ALS etc now they're referring me to neurologist professor in London. !!!
But I believe the original lymmes test was false how can I get them to test me again
I've just read about i genes test. Does anyone know what this is ???
vicky89033 terry62719
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hi i had 2 negative lymes test 2014 and 2015 but when my symptoms got unbearable i asked with advice from lymes disease action to be tested again and they advised that any test that was basic has proberbly only been sent to a local lab. the only real testing is done at porton down and yor GP has to print off a form from public health england web site your GP can fill in symptoms on this form and make 100% sure they write " please test for all co infections" + lymes and they have to write "forward to porton down lab" if not it will just go back to your local lab and never get to the right lab. i finaly got a possitive and co infection possitive -good luck
terry62719 vicky89033
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Hi Vicky where do you live if you don't mind me asking I've got muscle wasting in my calf muscle which I believe is due to what they think L5 disc degeneration which is annoying my S1 root nerve. But I believe I was bitten by tick in my right foot I can remember picking out a tiny jet black like little needle out my ankle and about 1 to 2 weeks later omg wierd numb right foot then terrible calf muscle cramps which spread into my thigh then into my buttock with extreme muscle twitches and electrical pains the electrical pains stayed for a while in my groin this is when I went to a and e I'm sure I've got lymmes but they tested and said not but why the sudden extreme feeling stemming from the bite area they didn't seem to believe me now I'm waiting to be referred to Nuevo specialist in London but my buttock is doing my head in and I've got muscle twinges everywhere now and muscle atrophy in bum cheek too what was your symptoms.
vicky89033 terry62719
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terry62719 vicky89033
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Who did you see in London. I'm being referred to Mary Riley
Did you get muscle twinges and electrical pains and extreme cramps
I work mostly from an office in Manchester in north west. or rather I used too I haven't been in the office since beginning of December
How's you now. Where's portion down
vicky89033 terry62719
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terry62719 vicky89033
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