Lymes disease

Posted , 11 users are following.

Does any one have any thoughts on the recent radio 4 item that said it is now thought that a huge percentage of people diagnosed with me/cfs probably have Lymes disease instead?

3 likes, 18 replies

18 Replies

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  • Posted

    Sorry then. The program was only on the week before last and it was news to ME that 'some experts think 9 out 10 people diagnosed with me/cfs actually have Lyme disease instead'. (I listened again.) I simply thought it was worth a discussion and if it benefited even 1 person it was worth it. It has certainly never been suggested to me as a possibility or a test worth having.
    • Posted

      hi chrissy. of course this IS news ''worthy''. thank u for bringing attention to it. it's just my occasional moments of cynicism getting the better of me. i shall ''listen again'' literally. i wonder where they pull the stats from? apparently, according to some schools of thought, that it's possible to have been bitten by a tick without being aware of it. so it's possible that the stats (9 out of 10) could be right.

      best wishes

      Caitlin

    • Posted

      That's ok, you're so right to be cynical. I wasn't assuming it was hard fact or the answer to all our prayers or anything like that but it made me prick up my ears and I wondered what people thought that's all. I'm not new to me/cfs (about 10 years) but I AM new on here so I apologise if I'm a bit old hat to others of you. I DID take time to read lots of current threads before I ventured any comment of my own but there are LOADS of them and I didn't actually find anything around this. Probably there is if I keep going long enough ..... 😊

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