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lymes disease

Posted , 6 users are following.

chriswakefield
chriswakefield

Hello

I came across this site after researching lymes disease. The last 2 plus years I have been so run down, to name a few symtoms: aching joints, body aches, vertigo, stiff neck, swollen glands, tinnitus, extreme tiredness but can't sleep, breathing problems, flu like symtoms, clouded head, and more..this seems to be getting worse.. and I think I may have Lymes disease.  I use to be a landscape Gardner and a serious hiker and always outdoors and I was always getting bit being outside..some times the part of my body would swell after a bite.. and now Im worried about my health. I live near Leeds in the North but will travel for a test. Does anyone offer this service? Or know of any one who does? Any information would be appreciated.  I don't know how long I can go on feeling like this.

Regards

Chris

 

0 likes, 6 replies

6 Replies

  • kelly33933
    kelly33933 chriswakefield

    Posted

    Hi Chris ,

    You need to see your GP and explain about what you do for a living , explain about the bites and the symptoms you now have and that you want to be tested for Lyme disease , if your GP knows his stuff he will inform you that the tests for Lyme disease are very unreliable , the only real way to tell is by going on antibiotics and see what happens but trust me antibiotics are no walk in the park and will make you worse before you get better , but you do get better along with a good detox diet and supplements im chronic Lyme and have been on antibiotics for 2 and a half years now I am so much better and had much the same symptoms that you have , persevere with your GP be firm take someone along with you for support , also the Lyme disease action is really good you will get tons of advice from them .

    Good luck

  • caroline91964
    caroline91964 chriswakefield

    Posted

    Hi Chris,

    Kelly's advice is spot on. I had Lyme Disease 2 years ago and was getting nowhere with my GP until I found the Lyme Disease Action website. I contacted them and they helped me to liase effectively with my GP to get the treatment I needed and I'm now better. Look them up and make contact with them. They are a recognised source of information and will help you.

    Good luck!

  • vicky89033
    vicky89033 chriswakefield

    Posted

    hi chris, the first thing you need to do is take a list of every symptom and the fact you were a walker and gardener also you remember bites to your GP and tell them you are worried you may have lymes. ask for the test - this is difficult but make sure they print the correct form from public health england and test for c6,immuno blot and an extended lymes pannel -this form allows your GP to give all the symptoms possible expossure. make sure your GP writes "forward to porton down lab for testing" ive recently had a nightmare with this - wrong blood form filled in,local lab didnt forward to porton down then bloods got lost at porton down lab. lymes action uk have been very supportive and have now offered to leaise with my doctor. the test are very unreliable though and its recommended GPs can phone the public health england gp helpline and get advice on diagnosing by going on your symptoms and giving antibiotics. good luck i hope you get the help you need-vicky
  • chriswakefield
    chriswakefield

    Posted

    Hi

    Thanks for all the advice!. Really appreciate this. 

    Regards

    Chris

    • vicky89033
      vicky89033 chriswakefield

      Posted

      hi just wondered if you managed to arrange a test through your GP or if they gave you antibiotics to try -vicky
    • vicky89033
      vicky89033 chriswakefield

      Posted

      hi chris, did you get your GP to test you for lymes if not keep pushing it after 3 yrs of progressive illness and negative basic lymes test ive finaly got a possitive result on the extended lymes panel sent to porton down. Ive really had to fight for this  but at long last im now being sent to infectious diseases specialist for treatment. i think i must have been bitten walking in the yokrshire dales but dont remember a tick just insect bites that i didnt take much notice of-vicky
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