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Hey guys, I'm having an ongoing battle with double vision and headaches. I went for an MRI yesterday, brain and orbits, waiting on results that should come in the next couple of weeks.
I had a lymes test done on the NHS but online I read that their accuracy is not very good. Lots of people have struggles trying to get an accurate/the proper testing here in the UK. My test came back negative, would it be worth asking my Gp for another kind of lymes test, or what can I push for?
My symptoms are binocular double vision, which means I can close one eye and see straight. I have minor swelling in my optical nerve, but the eye specialist says it's nothing to worry about. But it definitely is because I'm 25 and should not be having constant double vision and crippling headaches.
Last summer my legs were COVERED in what I thought were mosquito bites. They had red halos around them, and all of them turned into nasty bruises, some were almost the size of my palm. I have pictures of my legs at the time, but don't know how to upload them here. Next time I see the doctors for my mri results I will show her the pictures of the bites.
When I had the bites I felt fluey, my body ached like I had the flu, I felt very run down for a couple of days and my glands under my neck felt raise.
My headaches started intensely about a month ago, with three days very bad, then the onset of double vision which prompted me to go to the opticians, I have 20/20 vision, got referred to the eye unit emergency centre, had my pupils dilated and field tests, showed slight swelling of the optic nerve. My headaches only happen once in awhile, I maybe have 2-3 headache days a week as opposed to the bad 'flare' where I had them every day. The headaches come from my neck, or the back of my beck, which spreads over the top of my head to my eyes.
The nature of my headache prompts me to think of iih, which I hear lymes disease can cause. Because I hear whooshing sounds in my ears (not heart beat, whoosh whoosh, like liquid is being squeezed through my veins).
I'm 25, living in Norfolk, are there any special contacts for lymes disease in the area? What should I say to my gp to get her to really look into this.
It's very stressful, I literally cannot see, I can't go out, cross a road, watch TV, or function properly. Mostly I just stay in bed, feeling tired, rundown, plagued by headaches, and double vision.
I try and look at Google to find someone with similar symptoms and if things got resolved, but half the threads aren't finished with treatment the poster received, or contacts for further investigation, or advice for how to handle my symptoms with the NHS, so thank you very much if you can offer me any suggestions or share your stories!
Thanks you thank you thank you
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