M.E/CFS sound sensitivity

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Hi, 

I have currently undiagnosed m.e/cfs but in the process of a diagnosis. At the minute my sound sensitivity is horrendous. I can’t even stand being in a room with my family if they’re chatting? I wear earplugs but sometimes I can still hear and even that is too much. I often just need to be in complete silence. Sound just seems to completely overwhelm me and make me feel worse? Does anyone else experience this or know why it may happen? Thanks, it’s so horrible because especially at Christmas time I want to be around my family not stuck in a quiet room with earplugs in!! 

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7 Replies

  • Posted

    I know where you are coming from Georgina. I am sensitive to noise which I never was before. I can't stand the noise in supermarkets, restaurants etc so avoid going in them. I wear earplugs at night as my husband breathing seems to annoy me and he's not even snoring!

    Just another of the freaky things one gets with CFS/ME.

    Sarah

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  • Posted

    I am sorry that you feel like this, I have ME/CFS , I was diagnosed 4 and half years ago. The noise can be over stimulating at times, if I over do it the more sensitive to noise I get. Have you tried pacing? I mean by no means is it a cure but it helps manage it. I was stubborn and would just try and carry on like normal thinking that I could with this condition, definitely in denial for a couple of years. It never goes away and I do have bad crashes, where I am crawling up the stairs and can't lift my arms up. But I've learnt to except it and do try and pace, as hard as it is!

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    • Posted

      Hi Flower, yes I pace myself....well most of the time 😁.

      My neurologist told me if I walk for 15 minutes then i must follow that by resting for 15 minutes.

      I am guilty of over doing it at times for which I pay later, usually the next day.

      I'm not in denial.....but I have told myself 1st January 2019 I will be well again..... positive thinking 😂😂😂

      Sarah

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  • Posted

    Hi Georgina,

    yep, me too. sound sensitivity is an issue with me and I often need silence too. like flower, I find it's worse when I overdo things. For Christmas, make sure you manage to include rest breaks for yourself. pacing is also helpful. get people to help with as much as they can as all the extra Christmas "cheer" drains energy.

    Beverley

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  • Posted

    Hi Georgina,

    I never thought about noise sensitivity until my mum mentioned it when we went to see the cfs specialist then everything began to make sense. Apparently i used to complain about how loud others were talking when they weren't that loud.

    I work in a very quiet office that suits me fine but if someone is talking I find it hard to concentrate and have to put my fingers in my ears to read.

    I've learnt while im watching tv to turn down the volume while the adverts are on for just that little bit of peace.

    I'm worried about christmas day too. As we're off to my boyfriend's sister, there will be 5 adults, 2 children & 2 hyper dogs. I cant ask him not to go because he's been amazing and that would be cruel but i could just do with being on my own just for this year so i dont over do it. It's going to be so loud. Then the next day we drive to my family.

    Hope today is a good day for you.

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  • Posted

    Looks like my response has been blocked but often people with cfs can suffer with adrenal fatigue when the body is stressed - do some research on that and it may help. It can also make people sensitive to light

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