M.E medication help

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I am 18 years old and have been diagnosed with M.E for two years. Although coping, I get awful pain in my joints especially in my knees and my shoulders. I am a student and have a part time job and this really affects me. I have been given gabapentin and amytriptyline but noThing seems to be helping any suggestions?

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4 Replies

  • Posted

    You may be pushing yourself too hard, which can result in worsening of symptoms. One thing you could try is to cut back on activities and see if that helps. Pacing yourself and getting adequate rest are very important.
    • Posted

      Thank you Jackie - I have a bit of a problem though / my work are quite strict with people calling in sick and if I'm honest I'm worried that I'll get in trouble if I call in sick or they'll see me as less of an asset.

  • Posted

    Hi Becky,

    Sorry to hear about your situation.

    Regarding meds, the only thing that i've really found helpful is the amytriptyline. I'm only on a very low doasge, but it takes me so much less time to fall asleep now (if i take it at the right time though!). Although everyone is different so the benefits for you may not be as helpful.

    Meds are a really hard thing to get right. I take others as well to help with my concentration and secondary depression.

    But when it comes to the symptoms from M.E reducing activity and not pushing as much has been the best of help for me.

    I'm turning 18 in a couple of months, but after being ill for years i never got a chance to get a part time job. I had to cut way back on school and on a sport that a loved. All of this has made for a really tough time, but i'm hoping the struggle to get my activity right will pay in the furture. 

    I can't say too much about your current situation as i really don't know you, but i may i suggest you seriously consider dropping way back on work, school and anything else. Trust me, this was the last thing i wanted to hear.

    If your work is really strict, are they aware of your health? Have you spoken to them about adjusting certain things to make things easier for yourself?

    It may not be possible, but at least try and see if things can be worked out. Even the slightest of change could potentially help you immensly. 

    For me at the moment, i'm just trying to focus on school, but it's rarely that easy smile !


  • Posted

    I haven't found anything that helps the pain, I have just learned to deal with it,to a degree I can mental block it

    My problems are directly related to the flu,I do get better in time, I had a relapse in 2012 after getting the flu.It took me 2 years to recover.In January of this year I came down with the flu and had another relapse,it has been seven months and I am having trouble walking and don't feel well, I just tolerate the pain.Did you have the flu or the flu shot before you symptoms started. The flu shot within a year, I think there might be a connection but I don't really know


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