M.E relapse, applying for benefits

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I've had m.e since 2006, and had a relapse after getting tonsillitis, glandular fever, shingles all at once. Had to give up my job, and now applying for p.I.p benefits. I'm so stressed about my face to face assessment. Any one here get p.I.p?

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  • Posted

    , yes I got it. Not the mobility part though- even though I am virtually housebound. Just remember to answer for the majority of your days not your good ones. If u can do something but it takes it out of you or you could only do it with lots of rest then tell them. Good luck. They will ask how you got there and watch you from th  car park xxx
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  • Posted

    Hi Samantha, yes I managed to get PIP at both higher rates.  The best thing to do is to answer everything as your worse day, that is what I found.  Don't use the words sometimes, occasionally.  You have to express how severe your fatigue is and how much pain you get.  A professional adviced me to answer everything in the frame of mind of my worse episode which is that I can't get out of bed without assistance and am housebound.  I am like this at present 2 to 3 days a per week, but as we all know this can change at a drop of a hat.

    Go to Action for M.E. website where you can get advice about this.  Also, there is a print of for G.P.s explaining what to put into a letter to assist their patient to get benefits which help me get ESA and into the support group.  It is well worth asking your G.P. with help for this if you can.

    Good luck, fingers crossed.

    Tx

    Good luck, there are a few of us who do manage to get it.

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    • Posted

      thankyou Tina;   exactly what I was going to say.....go in armed...maybe even a Letter from GP???....Bron
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  • Posted

    yes i got p.ip just been through it all had highest rate for both like someone just said said fill out forms to your worst day and also ask for a home visit if you find it to hard to get to them i could,nt leave the house as i was so weak and  into much pain they tryed to get me to come but i would,nt hope all goes well for you but worth claiming for .
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  • Posted

    Thank u guys. New to this forum. I have a home visit, which was requested in a letter from my gp. I suffer m.e, and anxieties and depression, although you'll agree these go hand in hand. My evidence is a report from my m.e specialist explaining how it affects me, plus proof of appointments with occupational therapists etc. As u say I've been advised at the assessment to describe bad days... Which are most days anyway. I have got worse over the last 2 months since I applied as I'm stressed over money as I'm out of work and my husband has to work all overtime he can to just pay bills. I get confused and my memory is bad, and will be on my own at home for the assessment as my husband has to work. I'm really anxious.
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    • Posted

      Hi Samantha, I don't know whereabouts you live but you could get an advocate to sit in with you.  Failing that is there a friend, neighbour or ex-working colleague who would be willing to be with you so you are less anxious.  Ask your G.P. or specialist about an advocate.

      If you get PIP it will be back dated from when you first applied so  hopefully your money worries will be a little less for both of you.

      Wishing you all the very best

      Tx

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  • Posted

    I have received pip for the last 3months,it took 11 months to get it after filling out the application form, they would not give me a home visit, but came to my doctors surgery and paid for a taxi.

    i got the higher rate in mobility but did not get the care side,dispite the fact I have had 2 incidents were I had 2small fires in my kitchen which my husband put out, I no longer cook if I'm on my own.

    i never leave the house on my own any way due to panic attacks. I suppose that  I should be glad I got the mobility side, because i can only walk short distances and pain in my legs, I have also got a disability blue card

    so I can park close to where I need to be, sadly I no longer drive due to concentration problems. The guy that I had a face to face appointment with was very nice I'm glad to say. I feel that I have lost everything,career friends due to not being able to go  out much,driving as we'll .

    i saw a ME specialist at Addenbrokes hospital in Cambridge,she gave me a large questioner to fill in while she interviewed my husband first, I then had memory test concentration test and a few others, then interview me and my husband together and confirmed that I had CFS and ME it took all day but a funny thing happened, I fell asleep while waiting for my husband to have his interview and the doctor had to wake me up I'm so glad I was on my own.

    This is a hard illness to cope with and getting help is even harder so don't give up.

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  • Posted

    I had my face to face assessment today. I think it went OK, but I'm not sure as I get confused easily and can't remember half what was said lol. Fingers crossed and waiting now.

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