Machine to stop migraine

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Morning all my specialist as told me if this tablets don't work then he going to look into getting me a grant for a machine ..so what I would like to ask as anyone got this machine and does it work??am on amitriptyline 100mg a night have being on this a long time and last 3months he put me on epilim tablets am on the limit off 600mg and still the same its taking over my life am so sick of it all please help !! Xx

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  • Posted

    good morning theresa

    what a horrible time you're going through, you must be at the end of your tether.

    I have cervicogenic headache but I'm not totally convinced this is the correct diagnosis. I came off the amitriptyline, the side effects were not good for me. I had a goni (greater occipital nerve injection) 4 weeks ago but unfortunately it didn't help me at all. I'm now waiting for botox migraine injections which I'm really hoping will help. I am willing to try any possible solutions and as long as there's an avenue to keep exploring it seems to keep me a bit more positive. Is the grant you're hoping for a neurostimulator? I met a lady at my last appointment at the hospital and she had one and was thrilled with it. 

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    • Posted

      Hi, I have also had the nerve block but it failed to help. Awaiting NICE to approve botox in Scotland. Never heard of the machine but sounds interesting. Are both of you from the UK?
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    • Posted

      For me.. am sick of being on tablets I want to come of them all as to me there not working am filling my body with them and still not feeling any better xx
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    • Posted

      I just googled Neurostimulator but that is surgically planted and hasn't got good reviews. I am not on Meds Theresa. Migraine now holds me prisoner

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    • Posted

      Hi babs

      yes, what a dissapointment that was, especially after waiting 6 months to get it and apparently about 68% have a positive reaction, I guess we were in the other 32% >...... damn! 

      I'm in two minds about the botox injections but I'll let you know how it goes if you like. The lady I met at the hospital had had her headache for 5 years and jumped through all the hoops until eventually she got so bad they put the neurostimulator in, she did say it is very expensive and she had to try all the other options offered to her before they would entertain the idea of putting one in for her.  I'm in the south west on the edge of dartmoor but my very dear friend from Kilmarnock came to see me, we hadn't managed to meet up for 26 years, it was wonderful. I used to go to Skye a lot and just love it there, many happy memories. 

       

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    • Posted

      Hi Jude, I go back to Neurology in a few weeks but like I've said in previous posts med free just now because of side effects. Easy for them to say just give in to it as it doesn't affect their quality of life.

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    • Posted

      I just googled it to am not sure if this is it and I have had to try everything like the other lady..I see my specialist on Tuesday tea time so I let u know what he as got to say...as for the botox injections they was great at first and will worn you its about 30injections side of your head your neck and around your head but when you just want the pain to stop
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    • Posted

      It's worth putting up with the injections..and I have put so much weight on as well xx

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    • Posted

      The effects of aura are worrying me just now as I seem to get them without the pain part. Though seemingly this happens in over 50's

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    • Posted

      hiya

      I'm very new at this site so don't really know how to look at previous posts, sorry about that will try and investigate, I had encephalitis and I find I'm a bit of a slow learner! to be honest the best help I have found so far ( after many other possibilities) was to try seeing a chiropractor, he is very good and I'm sure that treatment is helping me to stay stable. and not get any worse. 

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    • Posted

      Hi Jude

      A chiropractor for migraine? What was the treatment?

      I've had migraine for years and meds gave me some quality of life and allowed me to work etc. I was on proplanolol and sumatriptan. Then I had a heart attack and during investigation they said I had a Long QT episode. This seemingly had been triggered by the sumatriptan. So now all meds are limited and haven't found anything that works for migraine.

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    • Posted

      Hi I had the nerve block and did nothing for me ...I just wish they could find something for me as I have it bad now for nearly 6years and it rules my life xx

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    • Posted

      Hiya

      I have cervicogenic headache so I'm probably different from migraine, my headache is a constant dull ache like a permanent hangover without even a wee sherry! my occipital nerve seems to be trapped somewhere and the chiropractor aligns my spine into place again to stop the nerve aggravating my head all the time. I've been on propranalol for about 10 months now and hoping to come off them too if the botox injections work, fingers crossed!

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    • Posted

      Me to Theresa. They just tell me to hang in there and something new and safe might come on the market! Was told nobody had ever did from migraine so to concentrate on my heart problems!
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    • Posted

      Hi. I was curious about your "cervicogenic headache" diagnosis. Do you get migraines related to your neck, then? Do you, by chance, get a migraine with aura when you move your neck in certain positions, as in looking down or up?  I'm at my wits end with this! I don't want to have neck fusion but nothing is stopping this problem!

      Laurie

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    • Posted

      Hello laurie

      I'm sorry you're having such horrible headaches too. I collapsed 18 months ago and since then I have had a constant headache on one side of my head and terrible balance which makes me feel nauseous. I was diagnosed with labrynthitis but after 6 months of not much improvement I was then put on different tablets and diagnosed with migraine headache. I then had a cranial osteopath come to me every week for 4 months, I tried to embrace the treatment but as time went on I really wasn't feeling very much better. My doctor came to the house and immediately called an ambulance, I had a scan and it came back clear. Someone suggested I try to see a chiropractor who also kindly came to the house ( I have been housebound since April 2015) he was the first person who actually touched my head and neck, he was very surprised no one had noticed a swelling of my occipital nerve and said he thought I probably was suffering from cervicogenic headache, he came a few times to the house by which time I was able to get the hospital car and get to the clinic ( I still need my wheelchair though) my doctor then referred me to a neurologist who agreed he thought that was what I have. I don't see an aura when I move my head but if I move too quickly I fall over. Like you I am finding it very hard to stay positive but am hoping the Botox migraine injections will help. Sorry this is such a lengthy answer, how long have you had your headaches? 

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