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Macular dystrophy pigment change in macula of teenager

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lorenda20171
lorenda20171

My son has a circle shape of pigment change in one eye with normal vision. Dr called it a pattern dystrophy. Everything on internet says hereditary but does it have to be hereditary? So scared due to what all I have read. He's 13. Has anyone had this and what's the prognosis, I hope it's some benign spot that can heal.

0 likes, 8 replies

8 Replies

  • artsunshine
    artsunshine lorenda20171

    Posted

    I have it also. Dont panic too much. It is heriditary, but can be via autosommal recesive, so parents are just transmittors and are healthy. In my family no one has it.
    • lorenda20171
      lorenda20171 artsunshine

      Posted

      How old are you? How old when diagnosed? 1 eye or both? Do u have any problems from it now?
    • artsunshine
      artsunshine lorenda20171

      Posted

      I am 27. been diagnosed in november. Both eyes. I had symptoms of bad night vision sicne i was 14, so that was when it started. I have leoblems with night vision. What about your son?
    • lorenda20171
      lorenda20171 artsunshine

      Posted

      They showed me his picture of macula. Did u see yours? What did it look like? His is dystrophy, pigment was a yellow circle, doubled in size in 1 year.
    • artsunshine
      artsunshine lorenda20171

      Posted

      Yes it is a cirlce. What kind of problems does your son have? Poor night vision? Anything else?
    • lorenda20171
      lorenda20171 artsunshine

      Posted

      He doesn't have any problems. Just a lil distant vision blurry as I did when I was 21. I'm a pharmacist and have always been nervous about hearing bad news from the eye dr for my kids. So I took him and they found it.

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