Maggie7848

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Hi I had a parathyroid tumour removed on the 11/1/17 after experiencing joint pain tiredness funny heads heart palpating and so on. I also have kidney stones.  I thought once the operation was done everything would go back to normal and I would have the energy to go to the gym and do the things I used to.  Sadly that has not happened. My calcium level is still high and I've been prescribed  20,000 IU of vitiman D twice a week. I'm still feeling really tired and have no energy . I've also but a lot of weight on, but on the plus side  my head is slightly better and the palpitation have stopped . As anyone else experienced this  or am I expecting too much   Please help because sometimes it's good to know I'm not alone Thank you 

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  • Posted

    It took me 4 months to feel fully well following my surgery for removal of a parathyroid tumor, even now if I overexcert myself my bone pain comes back a little, but only last a few days, you need to rest plenty get some early nights & cosset yourself. Best wishes Chrissy 

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    • Posted

      Thank you for your reply Chrissy . It's 4 months now since my operation my calcium is still high and the doctor has prescripted the high dosage of vitamin D . I hope I do start to feel better soon cheers Maggie. 

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  • Posted

    I'm not a dr so can explain a bit about your condition.  So you were hyperthyroid?   and did they take out your thyroid?  And wow that's a lot of vitamin d.  Are you on any other medication besides the vitamin d?

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    • Posted

      Hi pam34048 thank you for your reply . I did not have my thyroid out I had a tumour removed from my parathyroid glad which is near the thyroid. I had a high calcium level in my blood and they thought the tumour was causing this problem. Unfortunately my calcium level is still high and I'm being treated with Vitamin D to try and adjust it. That is all the medication I'm on . It's now 4 months since my operation and so far I feel little benefit . 

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    • Posted

      Hi Chrissy i asked the surgeon if everything was checked out after the operation and he said it was . I am now concerned but I have to go through this vitamin D trial. Thank you we will see
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  • Posted

    Maggie, have you had your PTH level checked?  With a high calcium score it would appear you still have hyperparathyroidism.  For support and knowledge you should join Sallie Powell's Facebbok site.  It's a fantastic source of knowledge about this diaease and also a great support group.  Just google:

                       Hyperparathyroid UK Action4Change

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    • Posted

      Thank you Alan I have to have another blood test done this week. The high dosage of vitamin D is making me feel ill. I will look on Facebook thank you for your help Maggie
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    • Posted

      Hello Maggie...how are you feeling? Have you experienced weight gain? I am terrifed about that after reading that so many people have!  thanks
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