Maggie7848
Posted , 5 users are following.
Hi I had a parathyroid tumour removed on the 11/1/17 after experiencing joint pain tiredness funny heads heart palpating and so on. I also have kidney stones. I thought once the operation was done everything would go back to normal and I would have the energy to go to the gym and do the things I used to. Sadly that has not happened. My calcium level is still high and I've been prescribed 20,000 IU of vitiman D twice a week. I'm still feeling really tired and have no energy . I've also but a lot of weight on, but on the plus side my head is slightly better and the palpitation have stopped . As anyone else experienced this or am I expecting too much Please help because sometimes it's good to know I'm not alone Thank you
0 likes, 9 replies
christine07286 maggie7848
Posted
It took me 4 months to feel fully well following my surgery for removal of a parathyroid tumor, even now if I overexcert myself my bone pain comes back a little, but only last a few days, you need to rest plenty get some early nights & cosset yourself. Best wishes Chrissy
maggie7848 christine07286
Posted
Thank you for your reply Chrissy . It's 4 months now since my operation my calcium is still high and the doctor has prescripted the high dosage of vitamin D . I hope I do start to feel better soon cheers Maggie.
pam34048 maggie7848
Posted
I'm not a dr so can explain a bit about your condition. So you were hyperthyroid? and did they take out your thyroid? And wow that's a lot of vitamin d. Are you on any other medication besides the vitamin d?
maggie7848 pam34048
Posted
Hi pam34048 thank you for your reply . I did not have my thyroid out I had a tumour removed from my parathyroid glad which is near the thyroid. I had a high calcium level in my blood and they thought the tumour was causing this problem. Unfortunately my calcium level is still high and I'm being treated with Vitamin D to try and adjust it. That is all the medication I'm on . It's now 4 months since my operation and so far I feel little benefit .
christine07286 maggie7848
Posted
Are you sure you didn't have more than one P. tumor it is possible if your blood calcium is still high Chrissy
maggie7848 christine07286
Posted
alan65290 maggie7848
Posted
Maggie, have you had your PTH level checked? With a high calcium score it would appear you still have hyperparathyroidism. For support and knowledge you should join Sallie Powell's Facebbok site. It's a fantastic source of knowledge about this diaease and also a great support group. Just google:
Hyperparathyroid UK Action4Change
maggie7848 alan65290
Posted
DocL maggie7848
Posted