Maintenance cream? Treated by your GP?
Posted , 5 users are following.
My biopsy result was 'chronic inflammation' and when I last saw my GP, a month ago, he said to use Dermovate if the itching returned - which it has - then stop using it when things improve and use it again when the itching returns, and so on. That's how things have been left and I don't have an appointment to see him again.
The original severe inflammation has definitely improved - after two months of using Dermovate - but I still have one area, inside the labia, which is quite red. This week, I've been using the Dermovate every other day, as I have felt itchy and a little uncomfortable. I'm also using a bicarb & water spray after going to the toilet, washing with Hydromol and moisturing with coconut oil - all of which I learned about on here, so thank you everyone.
I'm now wondering if using Dermovate so often, and long-term, is a good idea. Should I be using a less potent cream for maintenance? I'd be interested in what others use for maintenance and what regime works for you.
Also, still wondering whether it's worth asking my GP for a referral to a dermatologist. He dismissed it the last time I asked, but I do feel it would help to discuss things with a specialist in LS. Are others being treated by their GP?
0 likes, 9 replies
heather30576 Cheetah
Posted
Hi,
I'm guessing you are from The UK, as am I, if you ask for a referral ask to see a gynaecologist my dermatologist is a real prood, I think he would faint if he had to look at my lady parts...lol I have to see him as I had skin cancer diagnosis 2 weeks before my LS diagnosis, I pulled my trousers down so he could see my cancer on my thigh and he could not look without my knickers being covered up....seriously I thought he was going to faint..lol
I recently brought some diprobase ointment to keep in my bag for when I'm out, but it's really good at helping the itching.
Not sure what to advise you on treatment because I don't know if it's the same for LS as for inflammation. Hope one of the other ladies can help you with that. Good luck
xx
Cheetah heather30576
Posted
Thanks Heather. You certainly made me laugh! I'll look out for some Diprobase next time I'm in the chemist, as it would certainly be useful to have something when I'm out. From what my GP has said, it seems that the inflammation is treated in the same way as LS.
I hope your skin cancer is treated successfully and you're soon well. Take care and thank you again.
heather30576 Cheetah
Posted
Thankyou Cheetah, yes all cut out and sown up.😁
If its treated the same as LS my gynaecologist tells maintance is twice a week with the dermovate and moisturisers every day.
Cheetah heather30576
Posted
That's really helpful, Heather, thank you. So, you still use Dermovate for maintenance and not a less strong steroid?
heather30576 Cheetah
Posted
Yes so far, but I'm newly diagnosed, I go for my first 3 month checkup at the end of April, so I will know more then.
He will decide then whether to do a biopsy, although he has already said Ihave LS but didn't want to put me through it if he didn't have to confiding I had just had squamous cell carcinoma. So I'm concidering lying and saying I'm all fine just because I don't want the biopsy, naughty I know but reading what everyone writes it doesn't sound nice, it takes ages to heal, and if the treatment is the same whether you LS or LP so I dont see why I would need one, I don't have any open wounds so that's OK 🤥
Cheetah heather30576
Posted
I had a biopsy, Heather and it wasn't too bad. All I felt was the needle for the anaesthetic, then nothing more. I had a bit of a hiccup, as the doctor admitted he should have put four stitches in, rather than four, and so I bled a little for a couple of weeks, but everything was healed after four weeks.
I wish you the best of luck. Take care.
Gillian1956 Cheetah
Posted
Cheetah Gillian1956
Posted
Thanks, Gillian. Well, this afternoon I've made an appointment to see another GP next week and will ask to see a specialist. Although my original GP has been very good, you're absolutely right that it will be so good to talk to somebody who fully understands the whole thing and can advise me what sort of regime I should be following, as regards the steroid.
pat48434 Cheetah
Posted
First time I heard of using bicarb. I went the Borax route and had wonderful results. My Gyn, a wonderful woman, took a bi op first time on my "well Woman" checkup. I have unfused using a spray of borax, (the 20 mule team kind,"
and a vasaline healing type gel after using the bathroom. Hope you do get a second opinion, everyone appears to have results using different combos. Wishing you well.