1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Make sure you have the right diagnosis!!

Posted , 5 users are following.

wendy147
wendy147

A year ago I started all my symptoms. My Dr. immediately thought I had Polymyalgia and put me on a course of Steroids. I took these for a week with no improvement. My symptoms started getting worse, and in August 2013 I was referred to a Rheumatologist. He gave a thorough examination and, via reaction on the Fribro. pressure points, he had no doubt in diagnosing Fibromyalgia. However the symptom continued and I tried various medication to no avail. Things got really bad in Feb/March this year when I could hardly get out of bed and was walking around like a Zombie! My Dr, who has been great during all of this, did another blood test and the inflammatory markers were very high i.e CRP was 67 & the ESR results were 47. He referred me back to the Rheumatologist. I saw a different person this time and she suggested trying Steroids again as she thought I had Polymyalgia although she said it was possible to have both Poly & Fibro together. Four days after starting the steroids I started to feel some improvement and by the time 10 days was up I was a different woman!! I am so relived that, so far, all my symptoms have disappeared and I have bags of energy and feel the 'fog' that I have been functioning in over the past year has lifted. PLEASE make sure that your diagnosis is correct and that you do not have the raised blood inflammatory markers that was making me feel so awful. My recent blood test shows a massive reduction in these. I sincerely hope that this info. may help some of you - good luck. Wendy

3 likes, 24 replies

24 Replies

Prev
  • jemini
    jemini wendy147

    Posted

    Hi Wendy, any diagnoses would be welcome at the moment. Had a fair bit of stress lately and some days can hardly get out of bed. I've had several blood tests and other tests over the last couple of years but they show nothing and after numerous visits to the dociors i think they see me as a hypochondriac. I'm om Amtriptyline to help me sleep and when i complained about the hangover effect i was told as i felt awful anyway it wouldnt do any harm. I don't see any improvement, in fact my flare ups are getting worse and i cant remember a good day for a while. Back for more tests on Monday. I know it sounds strange but i hope they dont come back in the normal range again.

    • Xxxxxtttttttttt
      Xxxxxtttttttttt jemini

      Posted

      I know how you feel. One of my doctors a few years ago actually used to roll his eyes at me! The blood tests do show ANA so at least now they take me a bit more seriously. But yes its true you want them to find something cos at least then you know what it is and can look into treating it yourself through places like this and homeopaths etc os all the docs will do is give you pain killers and end you away to continue suffering! It can be an extremely lonely place. People dont understand how desperate we feel at times x
    • Rattler7
      Rattler7 jemini

      Posted

      Hi jemini , I apologozise in advance if this has already been said but stress can make things much worse and affect all parts of your body . I have problems losing my voice when I'm particularly unwell and the more stressed I get the less I can speak , it's all so difficult . The hardest thing I think is other people have no idea how difficult life can be x
    • wendy147
      wendy147 jemini

      Posted

      Hi Jemini  Hope you get something sorted out. I think both Poly & Fibromyalgia has some varied effects on different people. It almost seams they put that name to it and hope we will go away! Keep pushing for tests etc. If you go on the Fibromyalgia website there is a report on there regarding Magnesium. It may help especially if taken with Amitriptyline so may be worth persuing this. Good luck - hope you get some answers soon
    • jemini
      jemini Rattler7

      Posted

      yes, i know my symptoms get worse when i'm stressed. Let's hope that we will all one day get the treatment and understanding  that we need x

       

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.