Make: Urethra Stricture vs Meatal Stenosis from BXO/LS

Hello Gavin, I am a Male with LS and I have been dealing with it for 8 years now, although my Meatus has not been infected at all.

I am sorry you have not received any responses to your post. Can I ask, have you been dealing with the one Urologist, or have you had the opinion of other specialists? It may be helpful for you to see a Dermatologist who specialises in Genital Skin Disorders and perhaps such a specialist could work in conjunction with your current urologist to find the best solution for your situation.

It may also be worthwhile taking a look at two recent series of posts in the Forum by another Male LS sufferer who may have similar issues to you: -

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https://patient.info/forums/discuss/picture-collage-how-to-have-sex-with-lichen-disease--703057?page=0#3539769

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https://patient.info/forums/discuss/ls-diagnosis-confirmed-male--708355?page=0#3554350

. also

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https://patient.info/forums/discuss/does-occlusion-covering-the-skin-worsen-ls--708694?page=0#3556281

.

.... you may need to wade through the different posts and responses to reveal something useful to you .....

Gavin,

Sorry this hit you so young.

I have LS mostly around the meatus. Early on, there was urethritis but it went away. That said, my doctor is watching for any intrusion into the urethra.

Here are pics of my condition. It might help other men with LS to see pics of your condition so we know what it looks like.

Not to alarm you, but here is a major study of cases involving urethra and other LS related outcomes:

"Penile lichen sclerosus: An urologist's nightmare! - A single center experience" - Google it.

There are some studies that suggest putting clobetasol within the urethra. Most of these studies - indeed, any of male LS - are very small.

I would see a dermatalogist AND your urologist. For men, the problem is neither speciality is well acquainted with penile LS. The derm will know more about this skin disease and how to prophyactically treat it. The urologist can look for strictures (if there are any).

I have no strictures or stenosis. I do retain some urine but not sure if that is age or I am suddenly paying so much attention to urine and my inflamed meatus!

hello Gavin, as a urologist I do not have as much experience in the area as I'd like, so information on my end may restricted, but I can tell you that with the human body there is always a "chance of this or that" so for all we know you may very well have urethral inclusion- if you can I would get a second opinion from a doctor more suited to your ailment. as for the meatal stenosis there are many ways to treat it. I, myself have had it as a result from neonatal circumcision for many years- up until I was considered an adult. I couldn't find a doctor in my area that could do anything about it so I searched at home remedies. there are at home stretching devices that can help alleviate the problem, although they are very uncomfortable to day the least- essentially a smooth metal rod that is shoved into the opening to dilate it. that may be something worth looking into. surgery is another option as well but if you live in America it's really expensive and hard to find a doctor who will do it, which is why I recommend at home versions. your urologist could also help by using a medical device that does the same thing- assuming hes not a "garden variety" urologist.

I also have urethral strictures that I've dealt with my entire life and it's a pretty straightforward surgery but nonetheless ends with with a catheter for a while till you heal.

whichever route you go you must always be on the lookout for urinary tract infections as they are very prominent in men with urinary tract infections. sorry I couldn't be of more use.

I hope the best for you

Dear Gavin ,

I found a closed Facebook group for men with genital LS . Some , like you or me , have it around the meatus and some have it in the urethra . Message me and I can send you the link .