Mal de debarquement

After my own research I feel I may be suffering from mal de debarquement.

The reason I think this is for the following reasons

1 the first occasion I felt like this two years ago followed a very rocky ferry trip. I never felt like I got off the boat. It felt like I was walking on a trampoline and I felt the floor moving up and down as if I was on a boat. Poor balance. Mri clear..it lasted 4 months. I did vestibular exercises.

2. This time I have had this since end of January this year. No ferry involved. The symtoms to begin with were more worse. I feel like I am on a boat and everything is bobbing around...or I am bobbing around. Just like the sansation of being on a boat.

I have read that subsequent bouts of this can be triggered spontaneously but it often can longer and more severe.

3. The sensation goes when I travel in the front seat of a car. And I also noticed relief when I swam I felt relief. I have read that passive motion can make the symtoms disappear.

Does anyone know anything about this condition? Would a neurologist or an ent consultant be better to speak to about this.

I saw an ent consultant who said my symptoms were oscillopsia..And visual vertigo..?? I'm not sure but my symtoms are feel unsteady as though I'm on a rocky boat and bobbing around and as though I am bouncing. Some times it feels more prenounced than at other times. Often I feel it when I am in bed as though I am on a ferry bobbing up and down but it does subside usually but not always. Often I feel like I'm am swaying and even though I try hard to keep still I am actually swaying...so it is not just a perception of movement there is sometimes a slight sway which is almost unperceptable to others but noticeable to me.

I had an mri scan which was clear 2 years ago and recently had 2 balance tests calorific hot/ cold air...which also came back clear...

My first ent consultant said I had inner ear damage..this was over a year ago.

My second ent consultant wrote to my Gp saying he doesn't know the origin and perhaps it's panic attacks. Ent just said come back in 6 months ...December no change to treatment. No further advice.

My Gp has now refered me to a neurologist ...

This is a bit of a repeat post but I have spelt it correctly this time!!! and given more detail...

I would LOVE to hear anyone else's experience of this...or views or research...

Does anyone know of a specialist in the UK?

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