Managing CFS with children around

Posted , 5 users are following.

Hi There 

I have Mild CFS , only affects me about 4 days out of seven, the other 3 Im bouncing with energy, but the remaining 4 , Im struggling to move, aching muscles, headaches, tiredness and no motivation whatsoever. 

Well its the summer holidays, I have 2 highly atve children aged 6 and 4 , both deserving my fun side and attention, but Im struggling to find the motivation to leave the sofa most days . 

Can someone help me please, thier school holidays are slipping away and in between packing to move house and this CFS, Im struggling and really sad about it 

 

2 likes, 24 replies

24 Replies

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  • Posted

    Thanks again 

    I came home and asked my 6 year old to help me with the dishwasher, as we worked I started to become lightheaded and then developed serious shakes, It wasent that good. 

    • Posted

      Hi L.emma

      Really sorry to hear you felt unwell

      I hope you fell better soon?!smile

  • Posted

    Thanks Emma 

    I'm feeling better now 

    I really appreciate your support

    • Posted

      Hi Emma

      Glad you are feeling better

      Do you take any kind of vitamin supplements?

      I did take B12 methylcobalamin injections(these are not on the NHS) everyday....

      but just bought some chewable B12 methylcobalamin on amazon

      read the reviews to find the best one as I would prefer the tablets

      if they work as the injections are expensive! 

      also take a magnesium supplement 3times a week

      Also take a multivitamin drink daily

      I try to drink plenty of fluids but I stay off caffeine and fizzy drinks

      Take caresmile

       

    • Posted

      Hey , 

      I was taking vitamin D as my dr suggested my count was a little low for that. But i only took them for like 4 days ..... obviously not enough to feel a difference. 

      I have started drinking a multivitamin drink , I buy one from LIdl that has carrot juice and other fruits in it. I love them but fight the children for them when I leave them in the fridge. 

      Im really naff at taking tablets... but I need to do something 

      I need some help with the eating as I know that loosing weight will help

    • Posted

      Sitting in the sunshine for 20 mins a day helps with vitamin D.

      If you have a blender you can make a smoothie from blueberries apple and soaked oats and a little yoghurt and a scoop of whey protein powder (if you're okay with dairy)  I stick my powdered vitamins in a smoothie.  The oats help with energy and are very good for people with M.E. High veg diet with protein with every meal, do not skip meals, avoid high GI foods (sugar, white bread, etc) and get serious with pacing, the more you rest when you really need it, the more you will be able to do - listen to your body - you will know when you really need to rest (the shakes, feeling feint or dizzy, just rest it out)  NHS advice & treatment protocols are pretty rubbish and pushed me into severe M.E. as I kept pushing through symptoms rather than listening to my body.    It's best to see a pro when it comes to taking vitamins and supplements. I persuaded my GP to do for me, so they can tailor nutrition exactly to your requirements.  I've found the better I am at pacing, the better I become.  Changing diet and lifestyle can also really help.  I think the idea is to tackle one symptom at a time, rulingout all other things and then providing good nutrition so the body heals itself -for that we need to take away things that drain us and replace it with things that expand our wellbeing.  smile

  • Posted

    Hello, I have Fibromyalgia and unfortunatly just been diagnosed with CFS/ME too. I must have drawn the short straw in life I thing, as I have an Underactive Thyroid as well. So I know exactly how much pain you are in.

    I have 6 Grandsons and 1 Granddaughter. The youngest a Granddaughter is 2 and her little brother is 3. My youngest Daughter is 34 and says she can't cope with the two little ones as in her words they drive her insane. So me, being me; decided I would have them both on my own for two weeks as my husband works away. This I did, and they were little angels the best behaved children ever. I coped with them fine and took them out with their auntie to play centres. My own two younger children are only 13 months apart and I never had any problems with them, obviously I were younger. How my daughter can't cope is beyond me, I managed fine and with my illness too. they were great company. My house is so quiet now all thats left behind from them is fingermarks.

    Hope you manage your house move ok, and find the strength for your children.

    We are also in the middle of a house move too..

  • Posted

    Hello Emma,

    I to have been diagnosed with CFS, it really is a struggle everyday, with this condition. Everything is 10x harder to do that for normal people (for lack of a better word). The problem with the term CFS is that it is just a name and it say nothing about the cause of the problem.

    After years of searching i found out that in my case it was caused by weak adrenals (gluten intollerance). Maybe you are suffering from the same cause. An easy way to test this is to eat non-gluten for 1 or two weaks, and if you feel like more energized, you will be glad that you tried it.! biggrin

    I use vitamine C en E, Pantothenic acid and selenium to strengten my adrenals.

    I also use Adrenacomplex and metarelax to extra support the adrenals, it gives me a lot more energy.

    I hope my post was informative and good luck!

     

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