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After around 20 years of varying degrees of chronic fatigue/periods/spells etc (which I hadn't understood was cfs) until recently...I'm finding the more I accept and tune in the crazier my CFS is? I can spend 2 weeks feeling like utter bull..heavy depressed ill fatigued and then the next day high as a kite and a weird 'normal' feeling?! lol then back into another spell...it's so unpredictable?! A mad roller coaster of energy flow..who can relate and what are the best ways to manage cfs. I also get crazily bad post exertion malaise..which I didn't recognise until after this forum..I always have a big crash if I go out/am around people/new experience however wonderful? I so want to be on more of a level and understand how I can support myself in this....Any insight most welcome Thank You ...
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If you're getting bad post-exertion malaise, the answer is ... don't do the exertion. It's irrelevant how nice experiences are, the more of them you do the more you will continue to see-saw between the extremes, the target is to live as even a life as possible and when you manage that, you'll know exactly how much energy you can expend without paying for it too highly and life will be a lot more pleasant.
A bit of a pain to implement I know but hey, who said having CFS was easy...
Ok I have heard all this before but now I took it seriously. So as others have said I looked at what I was doing during the boom days and said that is way too much. So I cut it right back and it took quite a while to work out the balance and then I noticed that I didn't bust as much or went longer before I busted again. Yes it meant that things didn't get done, but this is short term pain for long term gain.
Using this information I slowly worked out what I could do and built up from there. I am so pleased with the results as I no longer have major busts, I still get short ones of a couple of days but now I can go weeks without a problem.
By my previous standards I am no where near leading the life I use to, but it was fairly hectic but now I know that I can do a lot, but not all of the things I want to do. The end result is that I am now actually doing much more, by doing much less on a daily basis, and hopefully that makes sense.
I am sure you can do it but its not easy, all the best
I agree we shouldn't do it. I even had a board made up for me next to my computer of a Hare and a Tortoise saying "A tortoise can complete more than one race". Unfortunately I have another sign next to that which says "Take my advice I'm not using it".
They are right, we should work with the energy we have rather than the energy we wish we have. I've read you should try to end the day with some spare energy. My problem is I don't realise I've pushed myself until I've gone too far. Therefore I've bust!
Sometimes we have to except a bust in order to do a particular thing. I need to try to consider how my busts affect me and others. For every boom I must bust.
I should try a 'trickling' level more. xxx
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