Managing the pain of Rheumatoid Arthritis
Posted , 4 users are following.
Does anyone have any tips on pain management? I have Rheumatoid Arthritis and have had since 2005. At the moment I take methotrexate by injection and have been since November last year. I have the arthritis in every joint and the pain I experienced recently when I had a bad flare up was unbearable and I could get no relief despite taking Dihydrocodeine and paracetamol. I did get steroid injections in both my shoulders three weeks ago and that has helped but the pain is starting to get me down. I never have a pain free day just different degrees of pain some days worse than others. My consultant is not very approachable nor is she very understanding so I can’t talk to her. When I was first diagnosed I did not think that after all this time I would be in this situation in fact the pain is much worse. I have also tried relaxation tapes but they did work for a short while but not now, I get to agitated to listen to them. Anyone any ideas?
1 like, 6 replies
Fanny_Jane
Posted
Very sorry to hear your problems with RA. There are other RA medications that you could try as an alternative and very often a gp will be able to prescribe them for you to try. There are also lots of other and different type of medications for pain control too, also tens machines, hot and cold therapy and visits to pain clinics via your gp.
The sad fact is that many medications have side effects and don't work as well as we hoped, that some people spend a lot of time finding out what is best for them. If you don't give them a try you'll never know. I would advise you to go to your gp and have a chat about it all.
I have had RA and now osteoarthritis for nearly 60 yearsand have had good consultants and bad ones. You can request to see a different consultant if you feel the one you have is not working with you properly.
I did this once and to be honest it was fine and everyone has forgotten I asked now, as the department is far too busy to worry about someone changing consultant.
I have lots of surgery's, epidurals, steroid therapy etc; It is hard living everyday with this disease.
It is a case of finding what helps you best and can take quite a while getting pain to a reasonable level.
Most of us find that full pain control is not attainable but being more comfortable is the goal.
There is a charity called Athritis Care, which has a great forum full of people like us. Google it and have a look. Also one called Pain Support.
There are lots of tips and ideas that may help you, they do help you to feel that you are not alone.
Good luck and hope you can get some relief and more help soon.
Dr_Sunita
Posted
poppet_doll
Posted
It is good to know that there are people out there with the same problems as myself and you have given me the courage to request another consultant as i have since found out i am not the only person to find her manner terrible. I do beleive she does know her job but she has no " bed side manner " at all and when you are in pain and feeling really terrible you really need reassurance which it something this person is incapable of. Thank you for your kind words.
poppet_doll
Posted
Best wishes
grace
Fanny_Jane
Posted
The Tens isn't for everyone but some people find it masks their pain a bit. At least you gave it a try so know it isn't for you.
Good on you about the consultant, sometimes you come across one that isn't for you, I've had both good and not so good in my time. When you find a good one who explains what is happening to you and puts you at your ease and is also realistic about what they can actually do to help, it's so nice.
Unfortunately though, we sometimes have to accept that nothing is going to completely take the pain and discomfort away, just lowers it a bit and helps us feel more comfortable with it all.
Many of us live with chronic pain, it is the hardest thing that we have to bear and I think that many doctors hearts drop a bit when they come across us. They probably really want to help but are limited in what they have to offer and what we can either tolerate, in way of side effects to medications or surgery that may not actually work as well as we hoped.
So I wish you lots of luck in your journey through RA. Do give the websites a look, they are very informative and help us to understand the disease. If nothing else they help you to feel that you are not alone. There are other sites out there as well if you look through Google.
My best wishes to you, Fanny Jane.
jjeremy
Posted
Jeremy