Managing withdrawal of long-term steroid therapy after Immunotherapy treatment
Posted , 3 users are following.
My 55 year old son had Immunotherapy treatment for melanoma. Prior to that had some lesions surgically removed. Since treatment has had periodic scans that show no signs of recurrence. Now dealing with side-effects issues trying to get steroid meds (prednisone) tapered off. Anyone with experience in managing this withdrawal? Can't seem to get body to generate it's own cortisol.
0 likes, 3 replies
SJA1955 jim1233
Posted
I myself have been trying to manage or at least scale down Hydrocortisone following 2 serious bouts of Pneumonia (100mgs of Hydrocortisone taken daily at the time). It is a very long and laborious process but, after 6 months, reducing this steroid by 5mgs each 2-3 weeks, I seem to be making progress (ie not suffering from severe abdominal pain and vomiting because the dose was insufficient and reduced too quickly).
Do hope that this information may be of some use.
cool_catalan jim1233
Posted
I agree with taking hydrocortisone . World Health Organisation recommendes hydrocortisone as number 1. Prednisone is lower in the list of recommended cortisol replacement medications. There is a list in Internet. I do not remember what I 'googled' though.
cool_catalan jim1233
Posted
My apologies for not having replied to your email properly. What I meant is that I am not familiar with tapering off prednisone ... as I never took it.
Many of us do not produce enough cortisol... ask your doctor to switch from prednisone to hydrocortisone, I've read it can be done, but you need professional advice for that.