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In January my hands became numb, painful and went into claws that I had no control over. My little fingers on both hands went so numb they felt non-existent. I had no blood or urine investigations and I was diagnosed with carpal tunnel syndrome and i had both hands operated on in feb and march.
In April I did have some blood tests and my doctor says all the levels are normal except vitamin d. I was taking vitamin d tablets but supposedly these made my calcium levels go up which caused spasms in my hands, arms and legs which led to me being admitted to hospital.
I have had lots of similar pain,numbness and tingling all over my body including my feet and legs. I also stopped being able to lift things up and I can't open bottles or jars. I tried to get the GP to refer me to a neurologist but they wouldn't so in the end we paid privately to see a consultant. The consultant was very annoyed that I had carpal tunnel release surgery without any real tests.
He then sent me to have an MRI scan and extensive EMG studies which came back mostly normal after some cramps could not be reproduced. My consultant neurologist first thought I may have had HNPP (Hereditary Neuropathy with Liability to Pressure Palsies), although due to the tests being normal he believes this may not be the case. He now believes that it may be due to stress/discomfort or possibly CFS. I don't believe that this is the case as I can trigger the symptoms to some extent. For example if I rest my arms on any surface my entire forearm will go completely numb and if I don't move them my hand begins to just feel like a deadweight at the end of my arm that I can't move and I have no control over once it begins. Although there are many ways for me to trigger it, once it begins I cannot stop it, it also happens on it's own without any prompt/trigger.
My own GP won't refer me to anyone for another 6 months. I am 19 and can't work as I am a software developer and can't use a keyboard very well and my concentration levels have deteriorated. I also can't travel for an hour on the train as i get pins and needles and struggle to walk when i stand up afterwards.
I have had many other symptoms that are constantly changing, some days I wake up and I can't feel my legs, it can take time for me to be able to stand up in a morning as my body stiffens up and becomes very numb. I have a lot of trouble sleeping and may only get 3-4 hours a night while constantly waking back up. I also have a very poor appetite and struggle to eat proper meals.
I would be very appreciative if anybody could give me any tips or may have some idea what could be wrong with me, I am stuck in limbo at the minute not knowing what to do next.
I've been on multiple different medications now, I started on amitripyline and then nefopam hydrochloride which I had a poor reaction to. At the minute I'm currently taking 150mg of pregablin a day and also taking many vitamins such as B12 and also magnesium sprays/baths although my vitamin levels are supposedly good.
As of now I haven't taken any medication that has had any positive effect on me at all.
Today I have also had new symptoms in my feet, I have white lumps, yellow heels and swelling around my ankle on my right foot. Both feet are also stone cold although this is a common occurance. Some images of todays symptoms can be seen.
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