Mary56

Thank you Sara. It's frustrating isn't it? I felt ok for a while today and then I suddenly came  over feeling ill again! 

I know exactly what you mean! It's horrible as you want to do things but you can't mange to and others don't understand! When you do try it completely wipes you out! As you said it's very frustrating!

Sorry i missed the 'h' off your name Sarah! At least this forum makes us know we're not alone! 

No I've not been tested for autoimmune thyroiditis. I've never heard of it but it might be worth looking into, thank you. 

Also the tests doctors do have scales of measurement telling them if something is ok or not and the range they use isn't broad.

I had blood tests for everything before I was diagnosed, and the tests said my liver was fine. But I went to a Naturopath in Harley St who did Vega testing on me and according to his tests my liver was not fine, and my heart was weak, which the doctor's tests didn't pick up on!

The range he used was wider.

Yes there is definitely a lot more to reading through tests. Trouble is I can't afford to see anyone private and I don't know how much my doctor will look further into things.

I couldn't afford it but I had mercury poisoning from my fillings and I had to get them taken out by a mercury free dentist. He did a few unemployed people for free. My mum paid the naturopath that did vega testing. I was very fortunate!

Mostly it's been finding out for myself about ME, as it is with most of us. Trial and error with diet, supplements and herbs etc. What works for us and what doesn't. Learning what works for other people has really helped me.

Thanks Sylvia. I will definitely check this out 

Hi Sylvia

thsnk you for your message. I've not had the tests you mention but perhaps I should. I'm not sure my GP would be too interested but guess it's worth a try. I am trying to pace myself but this has also meant not having much of a life, which gets you down doesn't it? How are you now Sylvia?

 

Hmm yes  life becomes very weary . it took me four years to convince my GP  how really ill I felt and she said what I needed was a trial of thyroxine(T4) but she wasn't prepared to give it a try !! She told me where to go for a private appt and said a private doctor would most likely prescribe it. This is what I did and after hearing my story he gave me a prescription for a very low dose ( to be on the safe side) of thyroxine . He said he could not understand why my GP would not give me a trial as it is not dangerous especially taken in low dose to start and cost very little to prescribe . He said doctors always went by symptoms before blood tests were discovered and given thyroid hormone . He started me on 25mg s upped it over 3 months and result was amazing, foggy brain , lack of concentration, pains in joints and muscles went other symptoms way down and the fatigue became more just tired sometimes . Autoimmune disease often masks blood tests and when the TSH comes back normal thats an end to it . I am not 100% well as there is no cure for hashimoto only treatment and that is with T4and T3 , this is why I became so much better when prescribed it .this is a long story cut short Mary  Hope this helps you to broach the subject with your doctor it's got to be worth a go. 25 mg s of thyroxine cheap as chips and not life threatening . Might give you your health back .

Thank you Sylvia. I will definitely chat to my GP again. She us a nice go so hopefully she will listen. So glad you are much imprived now. Take care. Mary 

Wonderful, that will be such an encouragement to those going through the diagnostic processes.

 

My doc gives me Thyroxine and it helps me. I should remember to take it regularly, thank you for reminding me! 

Georgia you really must take your thyroxine every day ! Have you been diagnosed with hypothyroidism and CFS ? Do you have regular blood tests for hypo? You say when you take it it helps so why miss ? I was eventually given thyroxine even tho my blood tests said I did not need it and after upping it gradually,my word I felt so much better! The relief when the foggy brain lifted and I was clear headed again .  I was about 50/60 % better and told the symptoms I still had were not connected to my thyroid and " diagnosed " with CFS . I was never happy with this diagnosis . The hashimoto diagnosis came much later after I found out I had never been tested for autoimmune thyroiditis!!! Maybe you should discuss this with your GP I have followed you on this forum and realize how dibillitating this illness has made you I would say ' what have you got to lose ' ? Sylvia 

I forget to take it, I'll take one now, thank you Sylvia. 

I should explain in case anyone else is in the same boat as me. i used to have carers because I have ME bad but the care was stopped around a year ago and I'm not doing very well so there's a battle between self destructing or continuing. I will continue because I'm stubborn like that but it isn't easy.