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MAS (multiple autoimmune syndrome)

Posted , 6 users are following.

louiselost
louiselost

It just hit me - i have this.  First one was under active thyroid (my dad also had this one), and then years later have pityriasis chronica (white blood cells attack skin) and now arthritis of the foot.

It seems that once you have one autoimmune disorder, others might follow which is rather disheartening.  Has this happened to anyone else out there?

1 like, 10 replies

10 Replies

  • barbara98940
    barbara98940 louiselost

    Posted

    Yes, mee too. Hypothyroidism. thrombocytapenia (TCP) aka low platelet count. Allergies & intolerances. Age related Macular degeneration (20 years too early - at the age of 46), they've recently found out it has an auto immune element.
    • louiselost
      louiselost barbara98940

      Posted

      Is there a cure for Macular degeneration, Barbara, like laser surgery?

       The rise of autoimmune diseases is incredible/everyone else in my family history had nothing like this (parents, grandparents, aunts, etc.)

  • steve36083
    steve36083 louiselost

    Posted

    Sorry to here about your condition. I have polymyositis. My immune system attacks my muscles and lungs. 

    I am on auto immune suppressants.

    what treatment and medication are you receiving ?

    • louiselost
      louiselost steve36083

      Posted

      Have had no trouble with the thyroid since I've been taking Levothyroxine 100 mg for years.

      I'm taking Acnamino 100 mg for the skin which is seeing some improvement but not contained.

      I'm sorry about your condition, Steve - if they could cure one autoimmune disease, then they could cure all.  My sister got Type 1 Diabetes at the age of 46.  But there is no history of it being in our family.  Life's a bitch.

  • patti85353
    patti85353 louiselost

    Posted

    It sure is....I started with microscopic colitis in 2012 then progressed to Hashimoto's in which my thyroid had to be removed. Now RA and testing for some type of connective tissue disease in which my skin is covered in a red , sometimes hot rash on my back,stomach, and chest that hasn't improved since last April, even with methotrexate....it's not an easy road with MAS but I'm going down fighting every second! Good luck with your syndrone and thanks for the info on pityriasis chronica, I'm going to research that to see if it fits my rash and joint pain!
    • louiselost
      louiselost patti85353

      Posted

      Patti,  thanks for your insight.  Pityriasis lichenoides chronica is an on-going skin disease with flattened brownish spots that usually comes in pairs.  Ironically, it affects the young and mainly males of which I'm neither.
  • lucynewas
    lucynewas louiselost

    Posted

    Are you being monitored by a rheumatologist? If not, or sounds as if you could do worry a referral.
    • lucynewas
      lucynewas louiselost

      Posted

      Dear Louise

      There are a number of sero-negative arthritis conditions that mask themselves as osteoarthritis - but there has been so much development in DMARDS (disease modifying drugs) and the prevention of joint damage (preventing the need for joint replacement) that I think it's worth exploring with a rheumatologist to make absolutely sure you're not missing out on something that could prevent future surgery and improve your quality of life.

    • louiselost
      louiselost lucynewas

      Posted

      Hi Lucy, I just returned from my physiotherapist and she recommended the same thing you mentioned.  She also suggested reflexology which I will check on, or possibly look up exercises to do at home.

      Thanks for that added comment!

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