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Massive aura migraine

Posted , 10 users are following.

pennylane909
pennylane909

I had the worst experience of my life yesterday.

I was rushed to hospital with symptoms of a stroke. I lost my ability to say words and then my speech all together, I was confused, couldn't hear, had wiggly lines in front of my eyes and memory loss. I was in a state of confusion for about four hours

Turned out to be a massive aura migraine. So scary :-(

Has anyone ever experienced anything like this?

1 like, 35 replies

35 Replies

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  • andrew94167
    andrew94167 pennylane909

    Posted

    Hi there,

    I suffer with hemiplegic migraines my first experiance was 18 months ago , i was working and have all my life and i collapsed terrible headace anyway i felt very weak by the time i got to hospital i had lost all feeling down my right side and went blind in my right eye . It was the worst feeling of my life they didnt know what was up until a specialist came in . It lasted a month the first time i was in hospital 6 weeks . Since then it happens regular not as bad but i loose feeling ive been back in hospital several times . I am now registered disabled it has ruined my life as im only 39 . Maybe ruined is wrong as im alive have a loving family and alot of people are worse off . I take about 15to20 tablets a day . Mine is hemiplegic migraine .

    Thanks andy .

  • StevenRose
    StevenRose pennylane909

    Posted

    I too suffer Hemiplegic Migraine and this sounds just like what you had Penny.  Yes it is scary for sure as I have been hospitalised 3 times this year.  I am taking Flunarizine and just started Botox.

    Good luck Penny

    • pennylane909
      pennylane909 StevenRose

      Posted

      Yeah i looked it up and it does sound very much like what I had. My boyfriend told me earlier that a doctor had used that word yesterday so it's likely what I suffered

      I am really hoping it was a one off occurrence :-(

  • StevenRose
    StevenRose pennylane909

    Posted

    Hemiplegic Migraine is quite a rare condition and my consultant told me that Flunarizine is the best preventative meds for it.  It didnt stop mine, but it did reduce the length of time I spent in hospital and since I had Botox I only had facial tingling/numbness and bad eye pains.  So at least no hospitalisation, thats an improvement.

    You need a referal to a neurologist, to get an MRI to start off with, then they can decide best treatment. 

    I hope it was a one off for you too. 

    Good luck to you and others who suffer HM on here we are all in the same boat.  At least we know, after we have MRI scans that nothing serious and life threatening is going on, but we also know too well how disabling and painful they are none the less.

    • pennylane909
      pennylane909 StevenRose

      Posted

      Yeah. They believe it may be linked to the contraceptive pill I am taking and to first stop taking that straighter away. Then if I were to suffer another episode as severe as the one I had yesterday, they would look at treatment options

      Thank you all for your advice x

    • StevenRose
      StevenRose pennylane909

      Posted

      well thats all very well, but they need to be scanning you at least, or did they do that in hospital?

      I dont think taking you off the pill is the answer.  Not the best thing for other parts of your life I am sure!

       

    • alex44230
      alex44230 pennylane909

      Posted

      Mine were caused by the contraceptive coil. I have since had this removed but they still occur each month starting with a collapse the last one at work last week. They are linked now to my period. When they first occurred whilst the coil was still in place I blacked out 5 times in a week once whilst sitting, everything shuts off. At least it has improved since the removal of the coil and only occurs once each cycle. I am hoping with the medication and my hormones settling this will improve! Keep me posted I really feel for you x
  • alex44230
    alex44230 pennylane909

    Posted

    I blackout and collapse with no prior warning, I then experience numbness and tingling in face and hands, this is becoming a regular occurance. I have been diagnosed by a Neurologist with Chronic Complex Basilar Migraine and started on 600 mg sodium valproate which after another episode last week has been doubled to 1200 mg. The whole experience is scary and I sympathise with you. Have you seen a Neurologist?

  • patricia_82161
    patricia_82161 pennylane909

    Posted

    Penny,

    I had to go to the ER twice last year with stroke-like symptoms. After they ran all the tests it was determined I had complex vestibular migraine. It was scary until I read that migraines do present with stroke-like symptoms. Since then, I have left my stress-ful job, redesigned my diet to remove triggers, and reevaluated all my dietary supplements. Magnesium glycinate is a huge help in prevention. I am not on any prescription meds for migraine and am doing so much better. I am also practicing meditation to clear my mind on a regular basis since I do so much thinking due to so many years on my job. Hope this helps. Know that this will all pass. Do take care of yourself and stay connected. It's important to have friends who understand because not even the doctors really know what causes these things. Blessings to you.

    • pennylane909
      pennylane909 patricia_82161

      Posted

      Thanks for your reply (and for everyone who has responded)

      I've since had two more migraines with aura. I saw zig zag flashing lines in the corner of my eye this time and I took my prescribed meds before it got to the stage where I would lose speech or sight. I am terrified of having another hemepligic migraine episode like the first.

      The meds helped but I'm just quite anxious because these migraines have come out of nowhere. I have always been a sufferer of headache but never of migraine and never with vision disturbance as well

      I saw an optician and I've had my prescription updated (I have poor sight) and I have seen a GP who prescribed me sumatriptan. I think I will go back and push to see a neurologist though because I would like to know why I am having them and why so frequently (three in the space of ten days)

      Thank you for all of your input. I will look in to prevention methods and taking vitamins. I hope you all feel well x

  • xhxdxrx
    xhxdxrx pennylane909

    Posted

    A few years ago I was on the combined contraceptive pill and suffered from severe chronic migraine attacks on a daily basis for about a year and a half even when I stopped taking the pill, they believed it was because I had a sensitvity to the estrogen, it was the worse time of my life and so debilitating. I have suffered for 6 years from chronic cluster migraines and has affected every aspect of my life. I feel your pain and hope something, one day can be done to help us all smile
    • pennylane909
      pennylane909 xhxdxrx

      Posted

      Really! It's so shocking what the birth control can do to us. I've had nothing but trouble taking them.

      (Developed a large ovarian cyst and then now the migraines). I believe it is all linked

      i luckily haven't had any since Easter weekend. Crossing my fingers

      Sorry that it affects you too :-(

      Hope everyone is okay x

    • xhxdxrx
      xhxdxrx pennylane909

      Posted

      I know, I then went onto progesterone only and developed a lump in my breast which thankfully turned out to be benign (fibroadenoma). There are so many variations to migraines and so many triggers that it's always going to be hard to distinguish the route cause for them. Hopefully one day a common link can be discovered. I am currently trying riboflavin (vitamin b2) and feverfew at the moment but have read that coenzyme q10 and vitamin b12 are helpful also magnesium
    • pennylane909
      pennylane909 xhxdxrx

      Posted

      Yeah I think there's a lot to learn about migraines

      It's definitely opened up my eyes to how varied and awful they can be

      I'm trying vitamins too, hoping they'll help a bit

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