Mastiodsectomy surgery
Posted , 2 users are following.
I've had an ear infection for 4.5 months, unresponsive to 9 courses of antibiotics and topical treatments.
I had a CT scan which showed the middle ear to be full of fluid which is likely infectious fluid, considering what is still coming out (literally dripping out of my ear). Surgeon cleaned my ear for the 6th time, using suction and tried to examine for presence of Cholesteatoma but he was unable to see well enough. He has ordered a specialist Mastiod MRI scan to look for Cholesteatoma and also determine how far the infection has gone into the bone and tissue.
He highly suspects the scan will confirm Cholesteatoma. He said he's 90% sure I will need a modified radical Mastiodsectomy. I have my scan in 2 weeks and see the surgeon again around Christmas time.
Has anyone here ever had that procedure?
0 likes, 9 replies
pistal666 dannysarruby
Posted
Hi Danny,
I had a Mastoidectomy this Time last Year although I had a badly perforated, retracted Eardrum along with a constant Ear infection, I was lucky enough to only be in the very early stages of having a Cholesteatoma. I had infection for Months and just like with you, totally unresponsive to treatment (The next medication that they were going to administer was going to mean a trip to the Hospital for it to be administered by I.V. ). After recovery, I was rid of my infection which in itself was a massive plus for me (as you well understand no doubt). Did they explain the procedure to you? It only meant a two Day stay in Hospital for myself and the only side affect was a slight change in taste sensation. Is there anything you are worried about or would like to know? I hope you are not feeling to fed up with infection, I have deepest empathy for you. AL
dannysarruby pistal666
Posted
Hahaa I'm not sure why it's posted 3 times either but it certainly gave me a laugh this morning 😀
I too have a perforated eardrum since the beginning of the infection but I got the infection whilst in a 3rd world country (10 seconds in a swimming pool).
When I was I the waiting area to see the surgeon, they called my name and I stood up and loads of the infection came out and it was so thick it was just hanging out of my ear... so the surgeon understands the impact it's having on daily life.
On top of all this I also have headaches, neck pain, ear pain, sickness and a wicked cough.
The surgeon spent 30mins going through things like "we will do .... if the mri is possitive and we Will do ..... if it's not " . For me, I'm just happy that it will be sorted soon but I think they're wanting me to go over the Christmas period and have surgery after that.
Did they put you on IV antibiotics after the surgery too?
Is the scar visable?
Did you work and if so, how ling did you have off?
Thanks:)
Danny
pistal666 dannysarruby
Posted
How weird is that, I got my infection whilst on Holiday in Spain from someone squirting me with pool water. They cut right along where the back of the Ear joins the Head, so you hardly notice the scar unless you run your finger along it. After the surgery it took me just over 2 Weeks to recover, once the packing was taken out there was no sign of infection as it had all been removed. All in all I was really happy with the results and haven't looked back 😉
dannysarruby pistal666
Posted
I think that settles it, stay away from the pools on holiday haha 😂
We're you offered the mastiodsectomy due to chronic middle ear infection or did it develop into mastioditis?
When I called to find my MRI scan date, the lady read aloud what the surgeon wrote in the referral and said "mastiod mri within 2 weeks diagnose intracranial / intertemporal complications of CSOM". I can't foresee them doingnit over christmas/ New year week, so it means I'll be well into the 5th month of this infection.
I think the scar and just possible long term problems is what concerns me. My GP has been saying for 3 months that I should be on IV antibiotics, maybe it would have prevented surgery. In the next few days there will be a new born baby in the same house as me too, so that concerns me and also after surgery too, so I am going to insist on having strong dose IV antibiotics too, regardless of what the Dr's want.
So did you have the bandage around your head for a day or 2, then take it off and a week or so later, have the packing taken out and stitches removed too?
Also, have you had any ear infections in that ear since?
pistal666 dannysarruby
Posted
Well it's been a Year now and no infections, (touch wood 😃 ). There was no bandage around the Head, just tape over the scar. I think I still have some pictures,,,,,I'll try to post them. I had mine just before Christmas last Year, but you know what Hospitals are like, I turned up once before that only to be told that they were unable to operate. It sounds like that once they have removed any possible infected bone, dead tissue, they will try to reconstruct the eardrum correcting the retraction that has been the home of the annoying infection that plagued you for the last few Months. Then they will probably fit you with a grommet to help drain the Eustachian Tube whilst healing, then pack the Ear. The stitches were dissolvable and the packing was taken out after 7-10 Days. Have you ever had issues with your hearing before? I had previous Mastoidectomy when I was 8 (30 Years ago) and the scaring was much more prominent than this time around, you would not know that I have this new scar unless I was to pull my Ear down, point it out and you looked really closely. The long term problems that are minimal far outweigh what you would face if the infection was to continue. The surgery lasted just over 2 1/2 Hours and I'm 100% happy with the results 😃 Is this the first major ear infection you have faced?
pistal666
Posted
PS: Sorry, I missed a question lol, I was offered a mastoidectomy due to chronic, recurring Ear infections.
pistal666 dannysarruby
Posted
Hi Danny,
I had a Mastoidectomy this Time last Year although I had a badly perforated, retracted Eardrum along with a constant Ear infection, I was lucky enough to only be in the very early stages of having a Cholesteatoma. I had infection for Months and just like with you, totally unresponsive to treatment (The next medication that they were going to administer was going to mean a trip to the Hospital for it to be administered by I.V. ). After recovery, I was rid of my infection which in itself was a massive plus for me (as you well understand no doubt). Did they explain the procedure to you? It only meant a two Day stay in Hospital for myself and the only side affect was a slight change in taste sensation. Is there anything you are worried about or would like to know? I hope you are not feeling to fed up with infection, I have deepest empathy for you. AL
pistal666 dannysarruby
Posted
Hi Danny,
I had a Mastoidectomy this Time last Year although I had a badly perforated, retracted Eardrum along with a constant Ear infection, I was lucky enough to only be in the very early stages of having a Cholesteatoma. I had infection for Months and just like with you, totally unresponsive to treatment (The next medication that they were going to administer was going to mean a trip to the Hospital for it to be administered by I.V. ). After recovery, I was rid of my infection which in itself was a massive plus for me (as you well understand no doubt). Did they explain the procedure to you? It only meant a two Day stay in Hospital for myself and the only side affect was a slight change in taste sensation. Is there anything you are worried about or would like to know? I hope you are not feeling to fed up with infection, I have deepest empathy for you. AL
pistal666 dannysarruby
Posted
LOL, I have no idea why this is here 3 X's