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MAV - migraine associated vertigo

Posted , 5 users are following.

michelle45491
michelle45491

Has anyone been diagniosed with this? MAV?

And has anyone got any advice?

Been suffering since October now sad and currently having accupunture once a week ( only bad it twice so far but hoping after while I'd see some improvement ) praying sad

All best to everyone x

0 likes, 17 replies

17 Replies

  • sophia25262
    sophia25262 michelle45491

    Posted

    Yes I have got it. Like I am on a boat. Had it for near 18 months now. Hate It. They said mal debarkement or MAV. But my ears act funny. I feel it is becaus eof odd symptoms and a blocked ear. But they found nothing. I had an mri on Tuesday so just awaiting results from the 3rd ENT I have seen. Gluten free helped. Loads of water too xxx

    It's hard but nothinh lasts forever so I keep telling myself that xxxx

    • michelle45491
      michelle45491 sophia25262

      Posted

      Poor you. Hope you get better soon sad

      I tried Diary & glutton stuff for little while didn't really do much. Then my neck started to play up was painfull apparently can be connected. Have you tried accupunture? Xx

    • sophia25262
      sophia25262 michelle45491

      Posted

      No I haven't tried but iv tried reiki haha .. my anxiety has been real bad. When the dizzy was worse I wasn't as bad as I am now with anxiety if tha makes sense... I just try not to put pressure on my body by having huge meals with all kinds in. I mostly only eat food that can help heal Me. Whatever it is. Is yours like a boat xx
    • michelle45491
      michelle45491 sophia25262

      Posted

      I have bad anxiety too cause of it as I get worried I'm gonna pass out. I now go counselling as I can't get out the house some days. I'm 23 I should be ha. But she doesn't think I have anxiety she things Iv depression cause of all this & she thinks it's bought all this on. She doesn't think it's linked at all. As I was very active ect before & I was working in Ibiza last year ha very active. So it's very bizzare.

      Try counselling Hun. May sound weird but talking to someone can help xx

  • Dizzimare
    Dizzimare michelle45491

    Posted

    I am part of a Facebook group for Chronic Subjective Dizziness (CSD) and many also have MAV. They follow the MAV diet and get results from it.
    • sophia25262
      sophia25262 michelle45491

      Posted

      Michelle what's your surname I will join the group too and add u. I'm 23 and I'm exactly like u was in ibiza just before I got this. And I won't go out cus feel like I'm gonna collapse too. Xx
    • michelle45491
      michelle45491 sophia25262

      Posted

      Iv sent you a private message.

      Omg how weird. God what horrible life's we lead sad it sucks we dont live next door and could meet & join together to fight then. I feel exact same as u Hun. I feel like gonna pass out. And I can't go clubbing or anything anymore. It's so annoying as I get so bored. U should deffo should give counselling & acupunture a go x

    • sue_23858
      sue_23858 Dizzimare

      Posted

      My neurologist put me on Flunarizine for my MAV. It helped for a year or better, but now i have calcium buildup in my inner ear that has crystallized and it makes me dizzy when i lay down, and of course putting my head up or down. He did something with my head, moving it in a couple of different positions. Then i had to wear a neck collar and not move my head or lay down for 2 days. Had to sleep sitting up. It worked, but just for a few weeks. When it came back, i was sick to my stomach for 2 days, and the room kept spinning. This time i,m just going to leave it. I notice that my tinnitus gets really bad on my bad days. Maybe someone could try Flunarizine. It might give u some time without being dizzy.

       

  • michelle45491
    michelle45491

    Posted

    Hi guys

    Just a update

    So been drinking that magnesium calms now & again ( not every day )

    It does make you feel sick ( not a nice taste ) but u find it does help the headaches.

    I'm going accupunture again today.

    I feel really anxious today I don't know. Maybe cause I don't like it sad the needles & I don't like doing these things on my own.

    I have also contacted a dizzy clinic ( vestibular )

    I'm just waiting for my dad to get back to me then I can book. So wen it happens I shale let you know the crack smile

    ❤️❤️ Have a nice day

  • michelle45491
    michelle45491

    Posted

    The past couple days Iv had chest pains out of breath feeling ( taken couple heart burn tablets as fort maybe that ) and felt really nauseous I did have a Drs appointment today but had to cancel as o felt soo faint & sick & didn't wanna be sick in there ( even tho haven't been sick I feel like I am gonna be sick )

    Advice?

  • michelle45491
    michelle45491

    Posted

    The past couple days Iv had chest pains out of breath feeling ( taken couple heart burn tablets as fort maybe that ) and felt really nauseous I did have a Drs appointment today but had to cancel as o felt soo faint & sick & didn't wanna be sick in there ( even tho haven't been sick I feel like I am gonna be sick )

    Advice?

  • michelle45491
    michelle45491

    Posted

    Just a update went Drs they have put me on Naproxen & a anti sickness tablet as I get bad neausa ( maybe some you get this? )

    She said it's not long term these meds just to relieve it at the moment ( been on them before & found them very good )

    Any who she did mention the next time you come in to try a form of anti depressant I told her I'm not keen & she was saying how it could benefit me. Iv been on anti depressants before and it made me worse ( changed my mood ect )

    Iv forgotten the name of it sorry but if and when I go back I will ask the same and discuss in more details & post it up.

    Iv also felt really anxious all this week ( maybe cause the sickness & stress of maybe buying a new pony )

    Morning here in the UK hope you have a lovely day xx

  • michelle45491
    michelle45491

    Posted

    Hi guys

    Just an update

    Iv been pretty bad for 2 weeks now with dizziness & it's making me very depressed & really tired.

    I went Holland & barrat & the women told me to take b-100 so I now take 1 a day.

    I also have vestibular therapy booked in next week ( wish me luck )

    And I now have accupunture once a week and she's started to do it in my head to help the migraines & stress.

    Has anyone been through any of what Iv mentioned? And can give some good advice.

    All the best xx

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