MAV POTS = Cervical Stenosis.
Posted , 2 users are following.
Hey everyone!
I just wanted to offer a little hope to others and a possibility of the root of illness that might be the same as mine! After becoming sick with the dizzies and all the other horrible symptoms, almost four years now. It seems there is a serious connection with my neck. I have been diagnosed with MAV or Vestibular Migraine and POTS and I do think I had or should say have both, but the underlying reason is the damage done to my neck from a 15 foot fall and a massive car accident. The human body is amazing and the central nervous system can fail for various reasons. This has taken several years to figure out and I have read about others thinking that same thing just never connecting the same dots for me. I am surviving by doing stenosis stretching and muscle relaxants. I still have imbalanced issues but I am watching my posture, especially on the computer, walking everyday, plan on losing 20 pounds that I have gained while being so sick. My CT scan said I had cervical stenosis but it was never connected to the gamut of symptoms. When I first got sick I painted a whole house ceiling and walls, I rem I couldn't move my neck, then pain was horrible, then I got what was a flu or illness...do they come together I don't know but I thought the illness for all these years was to blame.
0 likes, 4 replies
DizzyLizzy68 jack11633
Posted
According to MRI, I don't have central cord stenosis, but I do have severe foraminal stenosis, pinched nerve, facet arthritis all on left side- same side as migraine, bad ear, and facial symptoms. I also progressed to POTS like symptoms. I tried a cervical epidural which gave complete relief for several days. Next is possible neck surgery... physical therapy no longer working well as I think the damage is advanced.
jack11633 DizzyLizzy68
Posted
Hi DizzyLizzy! Glad to see I am not alone on this thinking! I am just waiting for my MRI, coming in early June. I expect it will give even more detail into the condition as my CT scan said it unable to report on certain areas due to significant hardening. All of my migraine pain, and TMJ is the same as you, from the side of damage and injury (severe whiplash). I was wondering about the epidural - is that the same as a nerve block injection? I am living off of extra strength robaxacet and extra strength ibuprofen right now, still unsteady, slight out of breath, nerve pain, loss of strength in fingers but most the other crazy stuff is being tamed so far, fingers crossed. I have tramadol injections set up for when it gets to the severe migraine "POTS" type stuff and pain. I had tramadol once before when I was really sick, I was able to have complete relief as well for two days, then it crept back not as severe but back, this alone is info enough to know that severe inflammation takes it to that POTS type level. How many cervical Epis are you allowed? My SCM muscle on the left side is also bulging, right side is normal I am hoping it gets checked on the MRI but I think I might have to ask to have it looked at. I am concerned as well thinking it must be pretty darn bad considering I am having this repeat situation over and over. I know walking helps, if I don't walk I feel everything getting worse hour by hour.
J
DizzyLizzy68 jack11633
Posted
Very similar symptoms as you. You can have several epidurals- some Dr's give 3 in line, over a short period of time. The issue for me was reaction to the steroids... I can't have more as I'm sensitive to them. I've had them in past for other conditions and was fine, but now I'm sensitive.
jack11633 DizzyLizzy68
Posted
Thanks for the info on the epi, I will definitely be discussing it after my MRI. If you have surgery I hope it works for you, I guess it comes down to quality of life! If I find anything new I will be sure to post for you.