Max tramadol.

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Hi folks.  Following an accident when I suffered an L1 burst fracture and diagnosed T12 complete I have been left with horrific lower body neuropathic pain.  I take 800 paracetamol daily, 900 pregabalin, 200 baclofen and 800 tramadol.  The pain manages to get through all this.  In London I was advised to try adjusting levels of these pills myself to find the best mix.  I found I needed ibuprofen on top off this and extra tramadol just to be able to function, up to 1600 ibu and and an extra 400 tram.  I have recently moved to lincolnshire where the drs a not willing to prescribe these doses.  They have just started me on amitryptiline, which I know from my time in hospital turns me into a zombie.  

Are there any of you that take over the recommended tramadol, and how you conviced your drs it was needed.  I don't have a long term pain specialist at the moment. 

Thanks,

Tull.

 

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12 Replies

  • Posted

    Hi Tull

    I am struggling to controller my pain at the moment, I live in east Midlands area

    and my GP won't let me have any more than 400mg Tramadol and 400mg

    Paracetamol I am also on Robaxin- a muscle relaxant, I am on 75 mg Amitriptyline at night, when my pain breaks through I take Oramorph. I use.Ibuprophen cream to rub on as I had stomach bleeds in the past with the tablets. When I get the burning pain I use cool pad which I keep in the freezer. I don't know if any of this helps..

    I am sorry your pain is so bad. I am quite new to this site and put out my cry for

    help last night and had some very nice replys with advice and support. So I hope

    you receive more replays with suggestions to help you.

    Sheila.

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  • Posted

    Hi Tull

    I am struggling to controller my pain at the moment, I live in east Midlands area

    and my GP won't let me have any more than 400mg Tramadol and 400mg

    Paracetamol I am also on Robaxin- a muscle relaxant, I am on 75 mg Amitriptyline at night, when my pain breaks through I take Oramorph. I use.Ibuprophen cream to rub on as I had stomach bleeds in the past with the tablets. When I get the burning pain I use cool pad which I keep in the freezer. I don't know if any of this helps..

    I am sorry your pain is so bad. I am quite new to this site and put out my cry for

    help last night and had some very nice replys with advice and support. So I hope

    you receive more replays with suggestions to help you.

    Sheila.

    Report
  • Posted

    Hi Full

    It's me again, I just wanted to say to have a look in the forum discussion for

    Cervical Spondilosis, you might pick up some usefully tips/ ideas and advice.

    Sheila.

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  • Posted

    I have Neuropathy in my feet but no pain yet. My Neuroligist has me take an IVIG infusion every 4 weeks. It is a blood plasma and I hope it keeps me from getting worse and pain which after talking with other people with Neuropathy they have pain. I can't take Tramodal as it makes me hyper. Sounds like you are taking a lot of meds which I wouldn't think would be good for you. I would get a second option from another Neurologist
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  • Posted

    Hi,just quickly I suffer severe nerve pain in both legs,I take 2400mg gabapentin which I found better than amitriptyline and also 200mg tramadol (was on 400) a long time ago I ask my gp  if there was a way of not being off my head all the time with tramadol,he gave me slow release tramadol,I don't get the big hi anymore,plus I've had spinal cord surgery,this reduced my meds from 360mg and 400mg to what I'm on now,if and when you'd like to know about the spinal surgery (electric pulses ) then let me know.☺
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    • Posted

      Sorry forgot,my go gave me liquid morphine (oramorph)when I was really bad,I'm in Germany now and have a tramadol liquid bottle (on top) that gives me drops its instant relief.you need the pain clinic to prescribe big stuff then your gp  will have to go along with it, keep smiling.
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  • Posted

    Hi there I too take over the max recommended tramadol . I take between 16 and 20 tablets a day. My G.P and consultant are aware and seem quite happy to just continue with repeat prescribing. I don,t even need to speak to my G.P I request a repeat script and its there waiting even if I only picked up 200 a week prior. I know this really does,nt help but im not sure if there is a specific criteria that the Drs work to or maybe my G.P practice does,nt give a hoot who takes what and how many ...I dont know sorry jx
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  • Posted

    Hi,I've been on 400mg tramadol Sr and up to 4500 gabapentin but although the gabapentin is hi anything above 3600mg your body flushes out,if I have bad nerve pain in my legs I take oramorph  (liquid morphine) then patches and so on,but not once since 1997 have I ever been given anything above 400 mg tramadol and nerve pain is possibly the worse pain as it does your head in,I have had spinal cord surgery in Germany and with 2 electric pulse leads in my spine coming down and connected to a 9 year battery in my butt I can receive pain relief with different levels off voltages in each leg therefore managing for the first time ever to reduce my meds to 200mg tramadol and 2100 gabapentin, some people I spoke to here actually have the machine on all day every day recharging wirelessly when needed and take a bit fat 0 medication,but apparently I need both,have a look at medtronics scs implants,I was in 2 days, out for a week's trial then in for 1 day,trully amazing. 
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    • Posted

      Wow duracell dave I have never heard of medtonics scs implants..I too have dreadful nerve pain in my legs, have tried gabapentin pregabalin etc and yes the nerve pain is excruciating at times. G.P not keen on oramorph which the hospital had me on. I am hoping to discuss the patches in the hope of getting off the trams. Good luck jx
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    • Posted

      Hi Jayne,all uk did was fill me up with pills,but my wife's german and we live here now,I was here 12 months then all tests done and operation (no I didn't pay ),the thing is medtronics is a US company and they do all the heart implants for stroke victims in the uk (my mum has one)and I found on the internet that they are all over the UK ..

      Emis Moderator comment: I have removed the link as it was to a site unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

      http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts

      http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

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    • Posted

      Hi Jayne I have replied but there holding it to look at because I put the uk web address in for the op info,but I forgot to say the battery in my butt cheek has a memory and when I get up it raises the pulsation to for example mine is 4volts in the right leg less in the left,then I sit which is worse and it knows to go higher then I lay down it go's to near 0 all by its self, technology fantastic,the hospital programmes you,you tell them what the settings  are and if I have a really bad day I have a wireless controller in my pocket to turn it up,I get strange looks when I'm out in a cafe etc with my wife,you know now why I choose duraceldave as my name ☺
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    • Posted

      Many thanks fo the reply dave I still find it absolutely incedible that there is such a thing. I mean I have had chonic nerve pain fo 3yrs with hardly any relief despite going though pain management clinics and all the steroid injections and the rest...awaiting surgical consultation as a last resort but doesnt look promising. I will look into your treatment and think the name duracell dave is very apt lol many thanks again jx
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