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May I introduce myself please?

Posted , 6 users are following.

Pasha333
Pasha333

54 years old, a keen keep fit bod who would run over ten to fifteen miles a week and think nothing of it. Raised money for Charity by running races and loved it.

Six weeks ago, I ran a 10k race in under one hour Ten minutes and within days I was hospitalised with weird sudden swelling in my hands, then neck, shoulder and hip and all came on literally within hours. I was in pain I can barely describe.

Two weeks later Anti CCP tests revealed Rheumatoid Arthritis. Floored was not the word…

Steroid intra muscular injection and spat out into the world again. I was told in hospital that this is aggressive and they intend to fight it aggressively too. At diagnosis, I was told about Methotrexate. I see a Rheumy nurse next month, so I guess I shall begin then.

Will I ever run again? Am I dreaming? Should I attempt to be/stay active even?

I am a very positive person and will maintain a positive manner whatever happens. But…. Well, here we all are!  

1 like, 9 replies

9 Replies

  • tim79598
    tim79598 Pasha333

    Posted

    Diagnosed with RA in March 2015, on Methotrexate and steroids since then. I am on track to run 150 miles this month on my treadmill and buring up to 20,000 calories. So if you follow your regimen prescribed by your doctor, this could be you too. The bad thing is this disease affects everyone differently.

     

  • lorraine74484
    lorraine74484 Pasha333

    Posted

    I sympathize with your situation. I am a dog walker and due to the progression of my RA I have had to have some surgery on my knee. I would walk 7 to 8 miles 5 days a week and had to cut back on my hours and how much I walk. I can say my mental state was much better with my activity level was up. My doctor wants me to keep active as it helps all aspects of RA, for now I will have to slow my activity level for awhile. I hope I can get back to my 7 to 8 miles a day but it will take awhile. I am hopeful.

    Keep up your good attitude and activity ad much as you can. We can't give up!!

    Best of luck to you

    Lorraine

  • Emily1234
    Emily1234 Pasha333

    Posted

    Hi carol do you mind me asking what your ccp result was? Also did your blood show crp markers? Hope you feel better soon x
  • clare32950
    clare32950 Pasha333

    Posted

    Hi Carol my story is similar to yours although it didn't start quite as abruptly. I start the same medication next week. I don't know about you but I feel as though I'm going into a room blindfold. Ive had my apointment with the nurse. I felt it was not the best. No reassurances or even explaining. I'm guessing they don't like to commit if everyone's different. I'm glad your positive. I admire you. I'm swinging between positive and worry. I think positive is the way to go. Good luck and keep us posted

  • gill0088
    gill0088 Pasha333

    Posted

    Hi Carol

    I feel for you, having been through similar. I did a great deal of research, and while I am on MXT, I am in week 6 of following a well-researched RA diet regime, developed by someone in a similar situation as yours and many of us, and have now got my ESR and CCP back down to 'normal' as confirmed by my rheumatologist during my follow-up consultation last week. He just wants to see the little remaining inflammation in my right hand go down, then will consider me to be 'in remission' - that's as far as he'll stick his neck out. My intention is to gradually reduce and get off MXT, and it is absolutely possible. It does require total discipline, and is worth it.

    I'll put more info below, and see if it gets vetoed, once again, by overzealous moderators, who don't seem to want us to share valuable information. Here goes:

    You absolutely must keep exercising, but avoid running for now; it'll cause more harm than good. Bikram yoga, and any other form of yoga, Pilates, etc., that does not entail subjecting joints to weight-bearing exercises.

    All the very best to you

    Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

    http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts

    http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

    • Emily1234
      Emily1234 gill0088

      Posted

      Hi gill is there any chance you could tell me more about the diet for RA you are on o see the moderator has edited or erased some of your message! What foods are good -bad?
    • gill0088
      gill0088 Emily1234

      Posted

      Hi Emily

      Loving the moderators! Can't send links to really helpful RA sites that have helped thousands of people reverse their RA. Thank goodness for PM. I've messaged you with more information.

      All the best

       

    • Emily1234
      Emily1234 gill0088

      Posted

      Thank you very much for the info kind regards take care x
    • gill0088
      gill0088 Emily1234

      Posted

      You're most welcome. Hope it helps you. All the best x

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