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May Thurner Syndrome and DVT and Post thrombotic Syndrome, do you have symptoms and looking for some

Posted , 7 users are following.

sheila91262
sheila91262

Do you have swollen leg or legs and pain and discolouration? Have you got venous insufficiency that hurts worse after a day standing or after exercise. We have been through a lot in the last 2 years after son developed huge DVT post surgery and he has really improved due to stents being fitted at a London NHS Hospital. I have lots of info to share.

 

2 likes, 24 replies

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  • jacqueline40411
    jacqueline40411 sheila91262

    Posted

    Hi shelia hope ur all ok please call me jackie hate my other name.i was put on steroids because of itching my whole body itches,also taking antibiotics doc thinks i have an infection which he says im one of the unlucky ones i am on warfrin/heparin as well now.still no stockings.hospital useless as i said before.Had a breakdown at docs last wednesday so he decided to try steroids etc.but i am dropping the dose daily as i cant afford to put anymore weight on or anymore sleepless nights.not funny when you go 4nights with no sleep.Going back to docs again tomz[tues] so fingers crossed.keep you informed.

     

    • sheila91262
      sheila91262 jacqueline40411

      Posted

      Hi Jackie, Sorry about the symptoms. Son took painkillers when his leg ached. Have you had much discussion about post DVT symtoms as GPs get so caught up in the blood thinners prescriptions etc that they don't even talk about what happens next. Your body is still healing the DVT which is why the doc should send you to get scan to check it is going. You can ask for a referral to a hosp Vascular Consultant to see about your pain etc. Good luck.

      I am a midlander too but down south nowadays. Sheila.

  • jacqueline40411
    jacqueline40411 sheila91262

    Posted

    hi shelia. thanks for replying going to hospital on 17th so going to ask for another scan cant wait until july.also still having trouble with inr yesterday it was 1.1 today after another trip to docs its 1.so they have increased warfrin to 5 but got too see my own doc tomz so it could all change again at one or the other. i will keep you informed.
    • sheila91262
      sheila91262 jacqueline40411

      Posted

      Hi Jackie and all on this post, son a has had 6 month scan and all is well, no clots and stents still in the correct place. He knew anyway as his leg is great. He is on Apixaban for 6 more months and it is fine, no more INRs.

      Still feeling lucky. Many thanks to the good guys, the NHS and the ground breaking scientists. Sheila xx

  • jacqueline40411
    jacqueline40411 sheila91262

    Posted

    hi shelia. glad son has passed with flying colours. please tell him to be careful on apixaban. i am still suffering after taking them.the itching was absolutly horrendous.and mood swings.just stopped speaking to anybody because didnt know what was going to come out of my mouth.hope he gets none of it. speak soon.

     

    • sheila91262
      sheila91262 jacqueline40411

      Posted

      Hi Jackie, so sorry you have side affects. Son seems to be lucky, Warfarin was easy and has no problems so far with Apixaban. He is quite glad to be having some pints of lager again. Good luck to all. Sheila.

       

    • sheila91262
      sheila91262

      Posted

      Hi to All on here. Hope you are well and things improving. 

      Our son was contacted by a journalist to write about his story. He had a massive DVT as you know and was lucky enough to get successful treatment using stents. If you want to read his story search online kirsty english never play sport again. It is only online at the moment, it might get picked up elsewhere, we want to spread the good news about treatment as it may help some others. Keep in touch,

      Sheila 

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