1. Community
  2. Brain and nerves
  3. Chronic Fatigue Syndrome

Mayo Clinic and CFS

Posted , 3 users are following.

sfend
sfend

Has anyone with CFS been to the Mayo Clinic, and did they help / suggest anything new?

Steve

0 likes, 3 replies

3 Replies

  • Deb1982
    Deb1982 sfend

    Posted

    Hi Steve

    i have not heard of this clinic, I was diagnosed 2 years ago with M E and fibromyalgia 

    and my life has changed completely, I spend 3 or 4 days a week in bed,if I go out at the weekend it puts me in bed during the week. I did work and had a real good job, I don't get any benifits so it is hard. I have been seen by a doctor, not mine but one that works for DWP AND HE HAS CLASSED ME AS DISABLED but I have to wait for 6months as it has to go before a medical board.

    Its good that I found this site because I find that people just don't understand this illness

  • ChloeCybil
    ChloeCybil sfend

    Posted

    I have not been to the Mayo clinic. There is not enough good medical care for us patients with CFS. Most doctors will not even commit to a diagnosis of it. Most of us have to treat ourselves. I find certain supplements beneficial and going to the chiropractor also helps. Someone one on one of the boards is trying acupuncture but said it is very expensive and so far does not really know if it is helping or not. 
  • jackie00198
    jackie00198 sfend

    Posted

    Very good question. i haven't been there, but I'll be interested to see if anyone else has. If you live in the eastern portion of the U.S., Dr. Paul Cheney is in North Carolina. Dr. Charles Lapp and Dr. David Bell are also in the general area.  All three are excellent CFS docs. (I think Dr. Bell specializes in children with CFS.) 
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.