Mayo clinic in Rochester
Posted , 7 users are following.
has anybody had any luck at male clinic in their rheumatology department in Rochester Minnesota. I called there and I filled out a form and they returned my call and gave me a record number and the case number and said I could bypass internal medicine since I had a substantial unsubstantiated diagnosis of Sjogren’s renal tubular acidosis as well as PMR . I was diagnosed with PMR in May 2019 and I have been up-and-down with prednisone thousand chairs from 20 mg down to 15 down to 10 back up to 20 flared very bad have to double took 40 now down to 30 but I am never symptom-free and I feel quite unwell and I don’t know how much of it’s the prednisone and how much of it is the PMR. On top of that I have osteoarthritis and Sjogren’s which also causes joint pain I have deteriorated as far as my mobility and standing is very hard for any length of period of time I feel unsteady so I’m using a cane some of the time I fell once luckily no major injury, I went from having really good low blood pressure to higher blood pressure of 140/78 and I am loaded with edema in my lower legs and ankles and feet. i’m very weak especially in the joints that are affected upper arms shoulders neck knees hips with very minimal range of motion. Every day tasks have gotten more difficult like showering and reaching everywhere getting dressed lifting things reaching for things walking any great distance etc. I’ve read so many cases that I’ve lasted for years and decided I can’t sit by the sidelines and not try and seek out maybe answers that I’m not reading about so that’s what brought me to go to mayo clinic. I’m waiting for my rheumatologist and my internist to forward on my records to mail i’ve read so many cases that I’ve lasted for years and decided I can’t sit by the sidelines and not try and seek out maybe answers that I’m not reading about so that’s what brought me to go to mayo clinic. I’m waiting for my rheumatologist and my internist to forward on my records to mayo clinic and then they will contact me to set up an appointment at Mayos Rheumatology department. I’m just curious if anyone has had any luck going elsewhere other than their rheumatologist or local hospitals. Specifically has anyone had any relief or help from going to male clinic in Rochester’s rheumatology department? Thanking you in advance for your responses
0 likes, 6 replies
Eimmarg ina0821
Posted
l love the fact that you never give up it gives me hope
TheRaven ina0821
Posted
I can't give anything specific about Mayo's rheumatology department but from personal experience I highly recommend the Mayo Clinic. My family is located in Minnesota and my father and both of my daughters have been to Mayo for diagnosis and procedures. If you go to Mayo they will look at your medical records but will do examinations and tests as if they don't know anything about you. They don't give much weight to previous diagnosis by other doctors.
The exam and testing schedule is pretty intense - you might spend a full day or 2 going from department to department before you ever see your specialist.
Their knowledge base is impressive just from the volume of patients they see from around the world. Our eldest daughter was born with a partially formed hip. Our GP had only seen one case in his career. He referred us to Mayo when she was 6 months old. Our doctor at May said he dealt with about one case per DAY. Thirty years later and our daughter has been a basketball player and a marathon runner.
My insurance doesn't cover Mayo Clinic or I'd have gone there long ago for my PMR. Best of luck to you!
ina0821
Posted
fhank you for your encouragement do they take medicare and blue cross blue shield supplimental?
TheRaven ina0821
Posted
I'm reasonably sure they do.
judith87642 ina0821
Posted
I go to Rheumatology at Mayo in Jacksonville, FL and I like them..once they ordered bloodwork and I had to fight for my insurance to pay
RD_Swede ina0821
Posted
Often - when looking at posts from the US - I notice the struggle to pay for medicines and doctors´ visits. In Sweden we pay at the most $ 100 a year for medicines and € 215 a year for doctors´visits. It includes blood work, X rays and other needed examinations. I know that in the UK there is a similar system through the National Health Service. When we compare with the US, we are glad to have it our way and unless you have an additional private insurance - all get the same treatment.