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Me again...

Posted , 6 users are following.

sarah-loui069
sarah-loui069

I'm sorry to keep turning here for answers about things that i'm sure are not as big of an issue as i'm deeming them to be, i just don't seem to get any sound advice from anywhere bar this site these days!

 I have my staff review this morning at work and i'm so worried. I do have a question though- If i was to suggest tp my manager the idea of reducing my hours some way, would i need to have a written letter from my GP to back that decision up, like proof that i'm struggling as much as i say? I know you need it for being signed off work to receive sick pay etc, but i wasnt sure if this is the same for reducing my hours or changing my days?

0 likes, 8 replies

8 Replies

  • caitlin39841
    caitlin39841 sarah-loui069

    Posted

    Sarah.  i'm sorry i  don't have any suggestions for this question, but PLEASE..............PLEASE  feel free to ask whatever you need to know on here, someone will know or be able to signpost you. sadly,  in reality  there's neither much support or help around for this condition.

    c

  • mazpaz
    mazpaz sarah-loui069

    Posted

    Hi

    Sorry I know I'm too late - just couldn't get going this morning, but I hope your meeting went Ok and we are all rooting for you! 

    Paz

  • sarah-loui069
    sarah-loui069

    Posted

    Thanks all. I must be honest though, i'm totally confused about my own health at the moment. I read so much info and research about it all and now once again after reading the Hummingbirds info on their site am at a complete loss as to what is going on. Maybe what many say is right and this really is all in my head? I have had ongoing symptoms for so many years now, test after test coming back relatively normal. So maybe this is all me then?

    My GP always calls it Chronic fatigue and hasn't really issued any real treatment other than anti-depressants and CBT. He says i should get up and be as active as i can to see improvements. I just find it hard to accept that i can go from being a very active, fun-loving 20 something year old (although my symptoms began when i was about 18/19) to now coming home from work and being in bed by 7.30pm, or feeling absolutely wiped out for days after one relatively tame night out (in comparison to how i used to socialise!)

    Am i really just creating all the fatigue and pain in my head? It's not the same level of severity every day. Some days are good, some bad. The pain can come and go. I feel as if i'm going crazy. I keep reading articles that say CFS is a made up condition and is purely phsychiatric in nature, where as M.E is a genuine disease. That confuses me in itself! I feel maybe i should just stop and take a step back from my health. Less Dr's appointments, less resting at home. Maybe if i stop focusing on it all it will go away, if it really is all in my head?

     

  • sarah-loui069
    sarah-loui069

    Posted

    So by my GP categorising it as Chronic fatigue- does that mean that he basically thinks this is mostly in my head, or that theres really nothing wrong with me other than being a bit run down? Its been years and years of this and i'm now completely doubting myself and my own judgement of my health and body. Fibromyalgia has been mentioned once or twice to me. Again, the difference between that and CFS confuses me.
    • mazpaz
      mazpaz sarah-loui069

      Posted

      If you are in the UK it will be called CFS or ME or CFS/ME. Most just say CFS so don't let that throw you - my consultant called it ME when I was diagnosed but my GP calls it CFS. You do need to keep physically active but it has to be done in a carefully controlled way. Mental positivity is always important for any illness including those with physical attributes e.g. cancer but it doesn't mean if you are feeling depressed that it will cause it to appear. Your description of what happens e.g after a night out etc is exactly what happened to me and I was officially diagnosed by the infectious diseases department at Liverpool. You need to find a GP who is clued up on it and will give you the right advice. Many aren't so you may need to hunthe about but once you do they can help. I don't think from what you say your gp understands. Your body is a great beacon for telling you what it needs so listen to what it's saying.

      X Paz

  • susan1957
    susan1957 sarah-loui069

    Posted

    Sarah why do you need to ask such a question.... You shouldn't  feel worried... If you are affected by ill health say so... have all the supporting letters etc that you feel you need .. dont the people you have worked wit beleive you? THEY SHOULD..
  • Bunnyhugger
    Bunnyhugger sarah-loui069

    Posted

    IT IS NOT IN YOUR HEAD! Trust your own instincts.  Doctors like the formula, pathogen A causes disease B and is cured by pill C.  Anything more complicated than that, they want you to go away and so they tell you it's all in your head. I have had to take charge of my own treatment.  I'm using the book available on Amazon by Jacob tietelbaum MD.
    • caitlin39841
      caitlin39841 Bunnyhugger

      Posted

      spot on Bunnyhugger on the simplistic approach. and sadly the  ''all in your head'' response  has become an endemic/cotagious disease amongst medics?

      keep on being your own best advocate.

      C

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