Me and my keloids

Posted , 7 users are following.

Hey everyone, so I’ve have keloids for as long as I can remember. Currently I have  6 circular/ ovular smallish ones on my chest , 1 of smaller size on my arm , 2 of the same size at the back /bace of my neck , and finally 1 longer linear one at the base of my back . That’s 10 in total ...and counting. Dealing with so many keloids for so long has definitely made me very self conscious but as the years go  you just get used to them as they become a part of you . I’ve seen my share of Docs and have done ALL the research and have heard it all ,but for me the thought of  pursuing any type of treatment terrifies me because I am fully aware of how prone I am to keloids . So the chance of reoccurrence  or a larger scar is almost  inevitable in my opinion.  And for a long time I was ok with this fact ... the fact that I’d be stuck with these “unsightly growths” forever. Untill about a year or so ago , the keloids on my chest  have BY FAR become  the most aggressive in terms of growth rate and pain . I’d guess the over the course of 2 years thay have tripled in size and have this sharp ,pin-pricking pain of pins and needles that at times seems never ending . There are nights where I can’t sleep because of the wave of pain that seem to zap their way around from INSIDE the flesh . Not to mention the itchyness which is an annoyance in itself but of the two is definitely easier to deal with . My other keloids all seem to have stopped in growth and cause me little to no problems at all which leads me to believe that the “chest location “ at least for me is my problem area and keloids that form there will just be a bigger nuisance than keloids anywhere else on the body . All of these factors have lead me to look into possible solutions once more ...surgical or otherwise. If anyone here has keloids on the chest region and has had treatment ,I’d love to hear of any  and all success stories . Anything helps as far as best course of action, size reduction and overall PAIN RELIEF.  I myself am going to start by trying topical numbing creams , I’m hoping that this will help alleviate some of the stinging pain that my keloids cause me untill I can make a decision. Thanks for taking the time to read and have a great day !

0 likes, 8 replies

Report

8 Replies

  • Posted

    Hi There,

    fellow sufferer here. I'm sorry you are experiencing this and I don't have much to offer other than understanding. I have found that the pain correlates with growth and once keloids have become more mature and skin coloured they stop growing. 

    I had surgical treatment once for a ear lobe keloid and I enjoyed 2-3 years of keloid free life before it returned and was back to the same size by year 5 or 6. That said it hasn't got bigger in the several years since. hurts and bleeds less hardly at all actually. I would say it's no worse maybe a bit better and I gave it a go if i didn't i would always wonder. If it gets much bigger or bothers me again I would try surgery again.

    Obviously your experience will be different but thought i'd share. people hear you smile

    Report Reply
  • Posted

    Hi there,

    I know the feeling. I too, had an ever growing keloid on my chest. I know the pain and itching and the self consciousness all too well. I tried almost everything under the sun. Black paste, apple cider vinegar, tea tree oil, bio oil, , silicone sheets, steroid injections. Nothing really worked.

    I continued to research new treatments. Long story short, I know of 2 that work well. I posted about my experience in one of the threads here about chest keloids. Anyhoo, one of the treatments is Cryoshape. They actually stick a probe through the scar and freeze it from the inside out. It's the procedure I chose to do.

    Part of the reason other treatments don't work is because the collagen cells continue to produce. Normally when a wound is healed your body knows to stop producing collagen to that area. Keloids form because for some reason that area didn't get the memo. So the scar grows over time and becomes raised.

    Cryoshape works by freezing/killing those cells. Basically starting from a clean slate. The healing process is long...like months- (I think it being on the chest made it take so long cuz your inadvertently move around that part of the body)...but not very painful. Only a 3% recurrence rate. My Dr gave me steroid injections mixed with 5-FU in the scar every 4-6wks after the Cryoshape-about a month after the procedure.

    It's now been over a year since the Cryoshape and my scar is completely flat. I have brown skin and did experience some pigment loss from the Cryoshape but I simply cover it with full coverage makeup when I wear v-neck tops. I'm totally happy with my results. I'd do it again in a heartbeat.

    The other treatment is SRT-100. My Dr said it's actually the best treatment available for keliods BUT I still opted not to use it because it involves a strong laser and he said once the scar has been treated with a strong laser it may not respond well to other treatments if the scar doesn't take to SRT-100.

    So with that I got the Cryoshape..with the idea that if it didn't work or came back (worse) I'd try SRT-100.

    SRT-100 is much more expensive too. And I THINK may require more than one treatment. With SRT they surgically cut out the scar then treat it with the SRT laser a couple days later.

    Talk to your dermatologist about it. Start calling around see who offers it in your area if your current Dr doesn't have it. There's a couple well known Dr who were featured on the show The Doctors that use Cryoshape and SRT-100. You should be able to find them on YouTube. The lady Dr is based out of Los Angeles...the guy is either Texas or New York.

    Best of luck to you!!!

    Report Reply
    • Posted

      Hi was the cryoshape treatment painful? I had cortizone injections a few years ago and it hurt like hell! However my chest keloid is still growing and so painful
      Report Reply
    • Posted

      Hi Summer

      The cryoshape procedure itself doesn't hurt as the scar is completely numb. The numbing injections prior to the procedure do hurt like hell... similar to the steroid injections but without the buring/stinging sensation afterwards.

      After the cryoshape, the scar will swell, turn all sorts of black and blue. It will ooze and at times itch. This is all part of the healing process. But during that time the scar itself is a bit tender. I remember having to keep it covered for the first 2-3weeks only exposing it in the shower. Then immediately putting an ointment on it (to prevent infection) and covering with another bandage.

      It's a long road to recovery- like months...think like 7-10months...just takes a raised scar like that time to shrink and natural tone to return.

      I don't remember exactly when but 6-8wks after cryoshape I did start getting the steroid injections (kenalog mixed 50-50 with 5-FU) every 6-8wks to aid in the healing process. Keloids are stubborn scars that want to return as the affected area heals.

      I think I did 2-3 rounds of the injections and my scar was flat. It took much longer for my skin tone to come up. Actually it's still not fully back but I'd say about 70% returned and I had the procedure done 2years ago. If you have fair skin this may not be much of an issue. I'm a medium brown black woman. But the scar is no longer COMPLETELY WHITE. Lol which nice

      I'd still do it all over again today if I had to!! That's how much it has changed my life. I still have a scar but it's no longer a keloid...just a flat scar that's a little lighter in certain areas than the rest of my skin.

      I did see my Dr recently however about another skin issue and she asked how my scar was looking. I showed her...and she thought it looked great. She also mentioned that now they are treating keloids with Botox in some cases. They found that it's less painful that the steroids (no stinging) and since Botox in affect freezes the muscles allows the keloid to flatten while restricting some movement just under the skin. She said it works particularly well for chest keloids cuz that area gets alot of movement from the neck and arms (which is why it's hard to treat/flatten chest keloids-all those muscles moving about).

      The only downside; Botox is expensive somewhere between $12-17 a unit...most scars my size would about 5-7 units...also Botox wears off around 2.5-3months...

      She didn't mention and nor did I ask if insurance would cover it. Botox can also be used for migraines- which is covered by insurance... getting Botox to slow aging or to resemble a cast member of the Housewives franchise, not so much. Lol

      See a dermatologist in your area, do some research online- even read studies...which I would do a lot. Which is how I came across Cryoshape many years ago. Be well informed even before meeting with a Dr. Tell them you know the procedure you'd like and ask them if they feel it would work for you. How long the recovery is, what are the risks of return or infection, how many patients they have actually done the said procedure on...what was their success rate etc?

      I wish you all the best.

      S

      Report Reply
  • Posted

    Hello, Back In 2014 I decided to remove My Keloid on my own. I got assistance from my younger brother as well. The keloid that I had was on the back of my left ear.I would say it was the size of 3-4 candy skittles rounded in a ball. At the time I was a grocery bagger at a Grocery Store Called Strack and Van Til. Many of my co-workers and customers would ask "whats that on your ear OR "how did that happen to you ear.I gotten so tired of it that I decided to take that chance to remove it on my own.(ALSO my Doctor did Confirm it was a Keloid and that if I got it removed it might come back even Larger!)I took my chances and looked online for Surgical Scissors.I found some for under $7 and ordered them.About a week later my surgical scissors came and it was time to remove my Keloid. My tools were Surgical Scissors,Ice,Gatorade bottle,Stove,SeaSalt which is found in Any Grocery Store and Regular Bandages that you would use on a Typical cut or after getting a shot from the doctor.I was Ready!! Once again My brother helped me with this.We put about 4 tablespoons of sea salt in gatorade bottle put it in microwave until it reached a temperature that I would be able to bare than shook it up. I put ice on my Ear/Keloid until it felt numb.Put the Scissors on the Stove until it turned RED HOT! YES After that my Brother Cut the Keloid off! It fell on the floor (Digusting Yellowish Thick Puss Inside) The Back of my ear did take a little burning from the Hot Scissors but nothing Major,didn't even take a pain pill after this. After The keloid was off I poured the Hot SEA SALT water on the back of my ear,Waited till it Dried (5 minutes) and put the bandage on it! I only used the sticky part of the Bandage Not the Middle pad part.Everything was fine besides me being scared as s**t that it was going to come back even Bigger! The next morning I took the the bandage off and the was a little puss and I used the Hot Water and Sea Salt and Bandage after about 5 minutes.I did that procedure for 2 weeks every morning.After the First week I would let my Ear Breathe from bandages for 30mins-1hr a day .No lump/Bump ever came.2 weeks after cutting the keloid off I stopped using the Sea Salt Water and only Changed the Bandage.I Used Bandages for about 2 more Months and after that I felt my ear no longer needed them.Today is January-31-2018 and my ear is free of Keloids.I Thank God that it never came Back. Please Share my Story with Others!

    Report Reply
  • Posted

    Hi, I've suffered from keloids for 10 years due to a ear pierce back when I was 17 years old and over the course of the years I had it removed through the rubberband method I did myself. PLEASE do not try the rubberband method. Although it did not get infected and had kept it clean .. it grew back..It looked good after the keloid fell off and healed but after 5 months it started grow back again. I had steroid injections before and all it did was stop the itching and the keloid did grow a bit smaller but as soon as I stopped the steroid injections it started growing back. The keloid was the size of a rollie pollie. I tried this method (Rubberband) twice and same results. REMINDER: PLEASE catch the KELOID AS EARLY AS YOU CAN!!!! Do NOT WAIT FOR IT TO GET BIG TO DO SOMETHIN ABOUT IT. For some people it was a success (rubberband method) but unfortunately all of our bodies are different and I suggest not to do this! Seek Professional help!!! My keloid has grown over the course of 3 years to the size of a jelly bean. It is now December 2018 and I have recently just removed my keloid through a dermatologist in the Bay Area in California. He first gave me three options on treating keloid scars which was surgery followed by steroid injections which the surgery was ranging around 700 to 1000$ followed with steroid injections. Steroid injection sessions costed 250$ per session and this first option had a re-occurrence rate of 50% chance of it not coming back or go with Cryoshape followed by steroid injections in which that costed around 1100$ to 1500$ depending the on the size of keloid which had a re-occurrence rate of 30% chance/70% success rate. Lastly, the most expensive option was the to do a biopsy followed by three SRT-100 treatment which is a superficial radiation therapy that you will go right after the biopsy followed by 2 more sessions back to back. My dermatologist recommended this method as one of the highest success rate of keloids not coming back...over 90% Success Rate in some cases... he said he wants to say its 95% because of the great results he's had with his patients. This procedure alone costed $2000 total plus a few extra $$ for the antibodies and topical ointments to treat the skin from the radiation and another ointment to treat it from infection. I am currently still recovering from the surgery but it looks great and is starting to scab up. My doctor said I will feel itching after the surgery as it is a good sign of new skin is forming. The SRT-100 will target the upper layers of the skin and kill off the cells that forms keloids and that procedure took only about 90seconds to 2minutes. My whole procedure was completely painless except when they stick the needle to numb you.. (stings a bit for about a minute but after everythings just goes numb and you don't feel a thing).. although there was stinging and throbbing sensations after the numbness went away, but what do you expect from a piece of meat getting cut off? I hope my keloid doesn't come back as it has always been a huge cosmetic insecurity of mines. I would recommend the SRT-100 procedure if you are facing this keloid war like I have. Please if you notice a small keloid on your ear and its become a decent size bump.. take care of it as soon as possible! You will regret it if it grows to a unbelievable size. I was tired of always having to explain what a keloid scar was and tired of people looking at me funny like I'm some monster or got some sort of crazy infected looking cyst. It definitely feels like a weight has been lifted off my shoulders, but I hope my post can help other people out to feel much more confident in seeking professional help. Please get yourself educated about this and do not do what I did. Also, I didn't want to go with the first 2 options presented to me because I really hated the keloid so bad I was willing to do anything to get rid of it. I hope this helps other people and know that you are not alone! I will give a follow up on how everything is healing.

    Report Reply

Join this discussion or start a new one?

New discussion Reply

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up