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ME and support

Posted , 4 users are following.

kathy1122
kathy1122

Im not sure if there has been a similar post on this, point me in the right direction if there is.

Id like to know if anyone knows of volunteers who have medical backgrounds that can give practical support by going to doctors with Suspected ME sufferers to help diagnose and educate there GPs and specalist.im sure this would solve a lot of issues with the confusion and missed diagnoses, we serously need to get to the truth.

3 likes, 3 replies

3 Replies

  • Bubbles61
    Bubbles61 kathy1122

    Posted

    Hi, think that would be a good idea as i know my doctor is as nieve & inept towards my m e now as she has always been, so uninterested & if i try to ask her any questions or ask if theres any medical break through regarding m e, she just shrugs her shoulders & grunts no, ahe makes me feel such a fraud that i leave it months b4 i go to her about anything,its been a very long & lonly 15 years,& how i would love to talk face to face with some one thats has got m e , had m e or actually belives it excists..
    • Scoobydoo65
      Scoobydoo65 Bubbles61

      Posted

      HI Bubbles, How sad you've had to tolerate such an unsympathetic GP for so long - My heart goes out to you-its hard enought to have this illness without having to deal with that too. Would you not change GP? I also had a GP like that for a year and the same as you put off seeing her for as long as I could, but I've now found another GP who doesnt know much about CFS/ME but is at least respectful and understanding of the key apsects of how it affects us physically. There are support groups too out there where you could meet up with others for coffee and talk face to face re M.E. etc on facebook. Also have you heard of lovely Toby Morrison?-he had CFS/M.E.and recovered- he might lift your spirits- you can find his videos youtube. xx
  • Scoobydoo65
    Scoobydoo65 kathy1122

    Posted

    Hi Kathy, what a great idea! I've not heard of anything like that personally in the town I am in but it really would help so many.If you took this nationally you would generate huge interest I am sure xx 

     

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