ME being assertive

Posted , 5 users are following.

Hi All

I went shopping on Saturday with Mum, Sis and daughter to try and get Mum a mother of the bride outfit. The subject of my not offering accomodation to our friends came up (see previous post) and my sis was quite sarcastic, saying Oh why cant you cope? :twisted:

I gave her a copy of the guide Alicia sent me and told her to read that. :wink: I was also able later in the day to say "Right I have had enough now, I need to go home" :roll: I am learning to recognise the signs of impending doom!! :shock: and feel more able to vocalise that I am having problems.

I got a phone call off Sis yesterday, saying that she had not realised the extent of this illness. So thanx Alicia, the guide worked. :D

I also said to my daughter, who wants to go shopping for holiday clothes next week, that I will need to build up my energy this week and that we need to have a strategy for the shopping expedition (involving Cafe Revive :tea: :cupcakesmile and she didn't scorn me :ok: cos she has had the guide to read as well :wink:

Either I am beginning to accept this :bleep: illness or they are

Hope this situation lasts!!! :roll:

Dale xxx

0 likes, 8 replies

8 Replies

  • Posted

    Hi there everyone

    That's a really good step forward Dale - I too have been handing out copies right, left and centre. We have obviously got to continually try and educate others about this wretched illness. :roll:

    Yes, thanks for the guide Alicia. I am meeting up with my new found friends (from the ME course I have been attending) for coffee tomorrow and I shall be giving them all a copy.

    A neighbour said rather a strange thing to me on Saturday (on my rare night out) ...... When she asked if I worked and I explained that I have had to pack it in because of ME blah blah blah ...... she said 'Oh, I had something like that ..... and I found that if you learn to accept it, you can get better'.PARDON :shock:I think I might just be slipping a copy of the guide to her too. Don't people say the oddest things? Or is it just me being ultra-sensitive? :roll:

  • Posted

    Good on you Dale smile We are all learning slowly but surely.

    Teedie

    xxx

  • Posted

    When I originally was given the guide at the Nat ME Centre I circulated it to all my family. None of them read it. To this day my husband has not read it, neither does he intend to. He shows no interest. I think that if he looks into it too closely he knows he will have to stop pretending everything is ok. He pays lip service to 'tiredness' but that is all.

    My most annoying thing is when his mum or dad ask how I am and his stock reply (every friggin time) is "Oh, she's a little bit tired" :evil: At that point I actually hate him for it. sad

    Still, I'm glad the guide is helping somebody. :D

  • Posted

    Hi Alicia,

    Men like to bury their heads in the sand :x As we have different pains each day in different places, my hubby would say, "What have you got now" Don't think he really understands either coz he will say the same as your hubby about being tired :?

    I have not circulated the sheet but think i will e-mail it to him at work to print off as i don't have a printer at home.

    It really is good information.

    Have a hug :hug:

    Teedie

    xxx

  • Posted

    Thanks Teedie, I need a hug. I learned an important lesson today.
  • Posted

    Hi Alicia

    You should tie your husband up (wait!!! we are having decorum on this forum :lol: ) and read it out loud to him. Pick a day when you have some energy :shock:

    Where is this Nat ME Centre. Did you get a referal to it or is it private? Did they help?

    Have a hug from me :hug:

    Dale xxx

  • Posted

    thanks Dale. I will make a new post to answer your question.
  • Posted

    I have been using this practie a lot and works almost everytime for me too!

    Donna x

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