Posted , 15 users are following.
I have a friend with M.E, but it appears the ME might be underlying her other problems. Such as manic depression and lythademia. I think ME is more a Mental health issue that a physical disorder!
0 likes, 21 replies
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tracy47348 JjasonD
Posted
Its ok Jason. You had a question mark. You dont know . Dont be offended by some replies. Heck, even i questioned myself, if this illness was psychomatic . But mines not. I definetely was affected by a very bad flu 28 years ago, after my first flu shot. But anyway! There is a wonderful movie out now that educates the world on this illness called "Unrest " ! Its on Netflix and pbs i think. Look it up please! And best of luck to your friend! She may want to try valcyte. Theres alot of research to be done as far as treatments etc. You almost have to be your own doctor. All i do is look up stuff on the internet.
Izzie_Lizzie JjasonD
Posted
I have read some of the responses to your statement.
Personally I am wondering why you felt the need to write such an inflammatory statements such as you have here of all places.
Just because your friend may have a mental health problem along with M.E. doesn’t mean M.E. is a mental health problem.
Furthermore it is like saying, if someone with a mental health issue gets cancer then the cancer isn’t “real” it’s a mental health problem!
You have contact with one unfortunate individual with a mental health problem and M.E. and suddenly your an expert - oh please!!!!!
Sounds like there may be something wrong with you if you don’t mind me saying.
Mental health is real anyway and painful. For some excruciatingly so.
You should be supporting your friend instead of playing down their suffering as “mental health “ problem as if mental health is nothing.
What is going on with the world. Suffering is suffering regardless of the cause.
jackie00198 Izzie_Lizzie
Posted
sylvia13942 JjasonD
Posted
Well it is certainly true that the mind and the body are linked. It is very hard to think happy thoughts for example when you have severe nausea or intense pain.
It can also be that if someone does have underlying mental health issues, they won't be helped by also feeling worn down by other symptoms.
But as someone who has seriously been considering if -or not -I have "post viral syndrome" (not CFS quite yet perhaps) after a sudden physical onslaught of some dratted thing which the doctor suspected must be a virus....then I can say that if anyone felt like I had felt all of a sudden and out of the blue, and wouldn't go away no matter what I did -then it is not basically a mental health issue of itself.
(sorry for that ever so long sentence!:0)
But yes, my feeling is that if someone is vulnerable psychologically, then the added strain of something like that -which feels mighty physical that's for sure! -won't help them much to be balanced and coping well.
I hope your friend manages to get through okay or at least has some recourse to assistance of one kind and another.
constance1943 JjasonD
Posted
I have several serious diseases, plus am in my 32d year of recovery from alcoholism and drug addiction in AA. I was diagnosed in Paris by my neurologist as CFS in 1989 - I had the immense good luck to have found him - but since then I've moved to Brittany, in the country (still in France) and thee is no hope to be had. I have also been variously diagnosed with manic-depression and chronic depression. I lived as best I could with ME until the death of my hsband in 2015: since then I have been overwhelmed with the pissy and my dog - all of which I am very grateful for. But I am going-on 75 (still LOOK great - makes me so angry when people don't believe that I'm sick unto dying), can't get out and join groups or even take my dog for more thanshort walks. I am surrounded by beauty, have a minimum survival retirement pension (PLEASE do not ask me for money!!!!) and wak up each morning sad that I haven't died during my sleep. I know thaat Elizabeth Kûbler-Ross says that grieving can last from 2-5 years, which would put me right in the middle. The problem is that I cannot really take care of myself and all the rest. I guess that what I really need is a mother (I had a biological one, but she was insanely jealous of me and made my life hell - thank you God she's dead).
How can someone like me find a reason for living? I speak perfect French but miss English terribly, haven't enough energy sometimes just to come upstairs to my computer.
SO - my take: it has been proved that ME is a serious neurological DISEASE; but trying to deal with it can send you into the depths of despair and leave you there.
connie ("miracolo" - because I need one.
sylvia13942 constance1943
Posted
Dear Connie, I was very much moved by your comment. My husband died a long time ago....1999 so I am used to it now but still miss him obviously. He still "pops in" occasionally either in dreams or in a quick moment while I am working some problem out usually, just to add support I think. He was my best friend apart from anything else. He always looks pretty dapper in blue jeans (which he never wore in this world!) and a new looking sweater, very often dark blue. He always asks me how I'm doing, and I usually tell him I'm not doing too badly. Don't know if he believes me! haha
I feel for you in your grieving. It is yet a short time since your dear husband passed. Grieving can remain for much longer than anyone's schedules! However it usually morphs into a sort of graceful mourning over the years, rather than agony and sorrow. There is no time limit to it though and of course tears can come any time.
Now it is important that you find love wherever you can. That dog of yours for instance. You must be in great pain and unable to walk him/her very far, and that must get to you. But they are filled with love for us and can be a tremendous support.
Some have a great spiritual connection with us which does not leave when they "die". They are also Souls and ones who have love for us.
I have great respect for you for getting through those hard challenges with the help of AA. I wish you all the best now through this hard time when you have no energy and feel rotten many days.
With my kindest thoughts,
Sylvia