Meant to graduate from uni and have the “best summer of my life” and now I have PR :-(

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I’m 23 and in a lot of distress due to PR. It took me a week and 4 doctors appointments with them patronising me and telling it was hives before I finally got to see a skin specialist to confirm what I already knew that it PR.  Bearing in mind I’m studying marketing and not a medical degree and I figured it out quicker than FOUR doctors.  

Anyway I have been crying so much every day because as a 23 year old girl about to finish her degree with many holidays, festivals and general fun planned for my summer before I go into my career I’m gutted that my skin which was completely clear, never even getting spots is not covered in this horrible rash. And I have a severe case which has spilled on to my face (I know it doesn’t usually go on the face, but it can). I’ve been using anti dandruff shampoo and sudacrem and it’s worsening and I’m so embarrassed sitting in the library with the most disgusting skin ever. I can’t stop crying it’s awful. Is there anyone who has genuinely used the prreze stuff to actually get rid of it quickly so I can warrant paying like 50 quid for it (I am a broke uni student). I feel like a lot of the reviews aren’t credible and probably paid for by the company who make it. I’m going to go on a tanning bed tomorow or Friday despite my utter detest for them and only ever using (religiously) bottle fake tan. I’m so pale naturally so it looks even worse. And my skin is such a wierd texture now. Literally couldn’t have come at any worse timing :-( im around one week in to the rash and don’t know how I’ll cope for the months + long endurance of this. I really need it gone atleast in the next 2 weeks.

I have 2 graduate job interviews next week and I don’t think I can go at this rate. I don’t even care about the itch I just want the spots gone and my lovely smooth skin back :-(

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15 Replies

  • Posted

    Hi Abbie,

    I understand what you’re going through as my pityriasis seems to have only just started to heal, but it is definitely on its way out. I am also a uni student and I can understand the amount of added stress this causes, but in my experience, the best thing to do is to try and have a positive outlook, easier said than done, I know! As I have had this for around 6-7 weeks now and have never been so body conscious, and I can’t tell you how many times I have cried or stressed over this.

    The things that seemed to have worked the best for me is sunlight, head and shoulders shampoo, eating healthy, drinking plenty of water and taking vitamin C. I say the latter because for a few days I didn’t do any of those things and my skin broke out even more. Once I restarted to do these things, it had noticeably helped fade the redness and intensity by a huge amount.

    I haven’t tried preeze myself so I can’t comment on that. I have heard that tanning is very efficient in fading the rash, again, I have only exposed my skin to natural sunlight and that worked well for me.

    The best advise I can give you is to keep positive, although it seems like it will never go away, it will, it is only temporary and your body is strong and clever enough to heal itself, so take care, eat healthy, drink plenty of water and surround yourself by people/things that make you happy. You are not defined by this rash.

    Again, I am still recovering from this myself and it has been a long drawn out process. But I can see things are getting better and they will for you too.

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    • Posted

      Aww thank you , so glad yours is going. What does yours look like when it’s healing? Mine looks different today than it did a week ago it’s much more darker and scaly I’m hoping that’s healing xx
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    • Posted

      It sounds like it’s healing definitely! The larger patches on my inner thighs went from a pinky/red to a very dark pink/red at first, which made me believe it was getting worse, but now they are flaking/peeling and some have turned into a beige/tan colour which blends in with my skin. The same with the ones on my stomach and hips. In my experience, the patches spread out and heal from the inside (flaky) and fade into a beige/tan colour. 
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  • Posted

    I had it for about two weeks and in that time tried every cream and body wash going.

    Im also not a fan of sunbeds but it was a last resort... after the first session it was slightly worse and itchy, after the second session (the next day/the day after - can’t quite remember) it was way better after a few hours - the marks had noticably faded, and after the third session were almost gone, by the end of the next day.

    My advice is to not spend £50 on cream. Spend a tenner on a few sunbed sessions and a few quid on a big pot of aqueous cream (used on babies/for exzema) - you can get it cheap from Savers or superdrug/boots will have it. Slather it on morning and night.

    After a week from the first sunbed session mine had totally gone and you’d never know I had it. Luckily it was never on my face so I feel for you there - but you’d be amazed how quickly it can disappear! Hope yours goes quickly too. 

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    • Posted

      I did my first sunbed today I did 4 minutes in a stand up one gonna go to 6 minutes tomorow but I’m so so fair skinned i don’t wanna damage it. What did your healing process look like? I feel like mine is beginning to heal possibly. So gutted it’s on my face it’s not the same as my body but it’s bad I feel so embarrassed. 
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  • Posted

    I am so sorry that this happened to you!!! I understand completely about the doctors and figuring out what you have before they can.  I HATE when they fob you off with, "well, use this cortisone cream and let's see what happens in a couple of months"... Sure, they don't have to live with it.

    YES!!!!!! Prreze works!!! I had PR for 14 months (biopsied and diagnosed, that is why I understand about doctors). I was rash free in 5 days. My skin was smooth again. It was still discolored, the rash leaves those discolorations behind whether you use Prreze or let it run its course. They can be lighter or darker than skin color, but they fade to skintone within a few weeks. It is a lot nicer than having that ugly red itchy scaly stuff though.

    Hope your heals fast!

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    • Posted

      I think if it hasn’t started to go by next Tuesday I’ll order some, I did a sunbed today and will do probably 4/5 over the next week. Yeah I don’t care about the discolouration I fake tan normally anyway as I’m so pale I just want the red spots gone :-( thank you 
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    • Posted

      What colour did your spots go because no mine is mostly flat and peeling but I’m literally completely dark red/purple everywhere. I’m really fair skinned and there is barely any white skin showing just dark red is this normal?
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    • Posted

      They can be lighter or darker than surrounding skin. They will be smooth- new skin where the rash was, not dry or flaky. They are not scars and will fade to skin color within a few weeks. Hang in there!
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    • Posted

      Hey thanks for your help but I’m in hospital now and have been for 3 days and they still are unsure what it is anymore as it is very severe and doesn’t fit in to the symptoms of any skin illness yet I’ve had all negative results for infections etc with my blood so it’s likely going to be auto immune disease :-(
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  • Posted

    Hi Abbie

    I am a uni student as well and understand completely what you're going through as I'm recovering from having a very server case of PR. It first started at the beginning of February and I still have it now but it's a lot better and hopefully will be gone very soon. It was so bad on my scalp and face at one point that I didn't want to leave the house at all.

    When the doctor said there was nothing they could prescribe me i just wanted to cry. They then said they could prescribe me something called Betacap for my scalp, it's easy to use you just have to put it through your scalp on a night time and then wash it off the next morning. Even after one use I noticed a massive difference and people commented on how much better my scalp was. The spots on my face and shoulders also started to fade after using Betacap a few times. My scalp and face fully cleared within a few weeks and I then felt so much better about myself even though I was still covered in the red spots everywhere else. Maybe this will help you if you're needing to use anti-dandruff shampoo? 

    Everyone told me about different creams to try but they just didn't seem to do anything. I then tried Childs Farm moisturiser and it helped me so much, I think you can get it from any big chain pharmacy (definitely boots). 

    It's a very long process but hopefully you can enjoy your summer as much as possible.

     

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    • Posted

      Hi Alice thank you. What does the healing process look like? I’m peeling so much and I am so red my body is 80% dark red and purple. I don’t feel like this is normal but I have a severe case too. I’ve noticed I have spots on the palms of my hands and now I’m more concerned. I haven’t left the house in so long because it’s so bad. 
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    • Posted

      Hi Abbie

      After mine had been peeling and flaky for a few weeks it started to become less raised but still just as red. It then started to fade but I've still got all the spots all over me. The ones on my back seemed to all just blend into one then start to fade as well.

      I never got any patches on the palms of my hands or feet so I'm not sure about that, maybe go and get it checked out again if you are concerned. 

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    • Posted

      I’ve been in hospital for the past 3 days as they no longer think it’s PR but are not sure what it is but I’ve been having a fever etc and it’s a different  rash now to PR as my skin is all flat mostly dark red and peeling xx thanks for all your help though 
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