1. Community
  2. Blood & Immune System
  3. Haemochromatosis

Medical info

Posted , 5 users are following.

philx
philx

A very good morning to all

My question of the day is,have any of you invested in a medical

Bracelet or a dogtag???If any answers are yes what did you have

Inscribed on it???it would be a bit long-winded

To put hemochromatosis on either.

Also any yes answers where did you purchase it and how much did

It cost??I was in bulgaria in June and could have got a stainless steel

One for around £8 ,but I had not being diagnosed then,they are almost

Certain I have genetic, I will find out for certain shortly.

Anyone having phlebotomy today good luck,but all have a good day

Anyway.

Cheers Philx Birmingham England

PS it would be interesting to know where you all live,,one reply was

From America ,I just assumed it was an English forum???

In your replies can you put where you are from???

1 like, 11 replies

11 Replies

  • mike80628
    mike80628 philx

    Posted

    Hiya Phil. Mike here...Brentwood Essex!!

    I've heard that some folk have a bracelet.....I won't be one of those. Wanna get on and live a normal life, with a few phlebs thrown in throughout the year and the odd blood test...then just forget about it. Wearing a tag or bracelet would just remind me of it every day, so I'll probably give it a miss.

    My next phlebotomy is in 41 days time, with a blood test next Tuesday. It's such a luxury not going every week now....my veins are pretty shot to bits, and need some good recovery time. Does anyone have a good and bad arm? My left is perfect, a good pint every time. The right is a problem...slow flowing, sometimes no flow...very hit and miss, which means the left arm gets it all the time.

    Anyway, have a good day one and all. How's the weather in Birmingham Phil? Beautiful day here in Essex, which is great as I'm a biker, and ride into London every day. Lovely day for it....

    • philx
      philx mike80628

      Posted

      Hi mike

      My favoured arm for taking blood is my right arm ,works every time

      The can only get a smal vein in my left.

      Mike as far as you know is this supposed to be a UK site only.

      Not as though I mind just thought it was strange to get a reply from

      America, but nice to see how for advanced they are than England.

      Re weather sunny at this time, but how quickly things change.

      Cheers Philx

    • mike80628
      mike80628 philx

      Posted

      Hi Phil. I think the site must be worldwide...as you say, there have been people from the states on here....let's see what other countries are represented over time.....

  • ruth51315
    ruth51315 philx

    Posted

    Hi Philx.

    You can get rubber ID bracelets from the British Hemochromatosis Society.  They cost about a fiver from the website shop but if you join the society, you get one included automatically in your welcome pack.  They say "British Hemochromatosis Society" on them.

    I am from Norfolk, about 20 miles from Norwich but way out in the sticks.

    In reply to your previous post, I wouldn't have a problem with my blood being used to help students learn.

    Have a good day, everyone.

  • mike80628
    mike80628 philx

    Posted

    Oh yeah...I joined the Society and was given a bracelet. I wore it all the time even in the shower. After a few months though, all the letters faded away! So, don't wear it in the shower!!

  • mary92507
    mary92507 philx

    Posted

    Hi

    i received a bracelet with my welcome pack, not sure what the pro's and con's of wearing it are?  Any ideas???

    hugs

    • mike80628
      mike80628 mary92507

      Posted

      Two things I suppose...

      Firstly, when people see it, they ask about it. Then that's your chance to tell them about the condition therefore letting more people know aboutit, and become aware.

      Secondly, I think if you're ever in an accident, to prevent medics thjnkjng you're a drug user cos of the look of your battered veins, they'll see your bracelet and realise the battered veins are a result of our delightful weekly venesections.....that's my thoughts on the bracelet....

      See ya..

      Mike.

  • Mrs._Z
    Mrs._Z philx

    Posted

    I'm from the States.

    I got involved in this website after my brother's death and my diagnosis.  It has been good for me because I don't have anyone else to talk to about this condition.  Although it seems most participants are from either England or Canada it hasn't changed the symptoms of the condition.  Treatment, however, may be a little different and I have relied on my hemotologist for her expert advice since she is quite knowledgeable and treats others with this condition.

    I never considered a bracelet and don't think I'd be interested in wearing one.

    Good luck to you. 

    • philx
      philx Mrs._Z

      Posted

      Hi mrs z

      Sorry to here of the loss of your brother,my brother died recently

      Too and I know how you are feeling.

      Please do join in our debates,and pass on anything useful that

      May assist us from advance treatments in America.

      Cheers philx

  • philx
    philx

    Posted

    Hi all

    Re tags or bracelets ,I thought it would be a good idea to have ,high

    Iron levels along with other ailments,on either tag/or bracelet, so hospitals would have all info

    To treat you fullly ,if for any chance you were taken ill and could not speak

    For yourself

    Cheers Phil x

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.