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Medication

Posted , 4 users are following.

mrs_susan74280
mrs_susan74280

HI would love to hear story's of best medicine for fibromyalgia, been on lots over the years , my arms and mussels ache terrible can't even go on I pad, and buttucks, plus rushing to loo All the time to wee , thank you

1 like, 7 replies

7 Replies

  • donna76140
    donna76140 mrs_susan74280

    Posted

    I take a antidepressant I take OxyContin for my pain I take siflol for my RLS I have ordered some hemp oil willing to give it a go seeing a specialist rheumatologist on the 9th my doctor said he will probably not want me on the pain medication but with out that I struggle to get out of bed at the end of the day my GP is my doctor he has been through everything with me and totally understands fibromyalgia my back shoulders and elbows & knees are the worst ??

  • donna76140
    donna76140 mrs_susan74280

    Posted

    What have you tried and what do you take and what do you think works the best ❤️
  • Flutterbie57
    Flutterbie57 mrs_susan74280

    Posted

    I am hoping that you get lots of replies to your post as I would like to know about medications too. I have had fibro for 22 years, but have never been given medication for it. I take pain killers very occasionally, as they never really work anyway. I have to take 3 lots before pain relief kicks in several hours later.  Over the years I found that massage, Osteopath, muscle stretches, hot baths, hot wheat bag/water bottles and my amazing little rubber ball to put under my painful muscles/joints/fibro points (what ever they are), have been my only way of getting relief. 

    ?For 22 years my Fibro has had a fairly consistent pattern, but in recent weeks my muscles, joints etc are causing me more problems than in the past. One suggestion is that I am having a Fibro flare up, so I have come on here looking for new ideas to tackle Fibro pain. 

    ?I had to grin about your "buttucks", as I have quite often, amusingly thought to myself, ' what did I do to deserve butt ache '. I could only share that on this site with fellow sufferers who understand.confused

    • donna76140
      donna76140 Flutterbie57

      Posted

      With out my pain medication I couldn’t get out of bed my back hurts that much I’m not going to suffer in pain why should I when there is good pain meds I know they can be addictive but right now I don’t care he put my on milnacipran which was meant to be a wonder drug for fibromyalgia but not for me I’m now on a antidepressant I take it at night it also helps me sleep was on mirtazapine but that put on weight so had to WD of that oh my god to go on a new one but this one seems to help ❤️
  • bill38615
    bill38615 mrs_susan74280

    Posted

    I have tried most of the opiates which just leave you numb and listless. Over the last 3 years I have been on a max dose of Pregabalin which does help without doubt for my normal pain relief. On flare ups I might opt for a codeine or two though if I want to work the best I can take is Paracetamol.

    Other remedies that I use are heat pads, heat rubs,hot showers and rest which is the hardest one of all.

    I have a massage pad but really that only helps very slightly and can actually aggitate the back and neck. I hate how every single part of me hurts and how little known about Chronic pain.

    I have heard of a treatment called "Old pain to go" I might give that a go as no other medical treatment seems to work.

    I will watch this article with interest to see if anyone is getting better treatment than me.

  • bill38615
    bill38615 mrs_susan74280

    Posted

    Susan, tge only anti I use is vit D. I also do breathing excersise and try to read inspirational stories and examples of mind over matter though I have to say it can be hard going at times.
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