Posted , 4 users are following.

Hi all. It's Zoe again.

I'm sure some of u already know this information but it's surprising how many don't.

I've had FMS since I was 27. I'm 40 now.

Spent yrs seeing different specialists. Meds did not relieve anything at all.

Cutting a long story short yrs into FMS I met a dr not one I'd seen before. He was v interested in FMS. He explained to me what his view on it was and then he talked about a combination of meds .

Anyway I tried them and boy did it change my life.

He gave me slow release painkillers some call it modified release tram adolescent and a medicine called Dosulepin normally prescribed for depression. We worked with the doses. I actually managed to fall asleep and the pain changwd using the slow release form.

Slow release is amazing why had I not been told about this yrs ago. It all made sense. Fibro pain never goes so why take pain killers that yo yo the pain.

I'm now about 7 yrs down the line. Things aren't perfect but they are so much better thanks to slow release medicine and the Dosulepin.

I'm shouting out about this combination.

Hope this helps even just one person.

Thanks for reading.

Bye for now.

1 like, 7 replies

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7 Replies

  • Posted

    Hi Zoe  I have been diagnosed with Fibro.  I do not want to go down the road of strong painkillers but I have been on a low dosage of Dosulepin for 15 years not for pain but for panic attacks and depression.  Thank goodness I do take them because they have certainly helped me get to sleep in the nights.  Even though I wake up during the night in pain I can usually go back to sleep because of the Dosulepin.They come under the same group of meds Ametriptilyn which are often used with fibro to help with pain.    


    So pleased to hear that you have finally got a group of meds that are helping you and hopefully others may find these helpful as well.

    Take Care

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    • Posted

      Thanks 4 ur message. It's good to know. Unfortunately if I don't take this medicine I would be bed bound bad my 5 yr old daughter would be taken from me.

      Before she came along I was exactly the same as u meaning I didn't want to have to take medicine. At that time I was in bed 22 23 hrs each day. I had no life.

      I'm happy for u not having to take pain relief I wish I could.

      I lost a child 20yrs ago. Not because of my illness. But the thought of not having my daughter and losing her too would kill me, my heart.

      For some people it's not so clear cut.

      Uve done so well and I know how hard it is.

      Good 4 u.

      Keep strong.

      Gentle hugs


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    • Posted

      Hi Zoe, I am so sorry you have so much to cope with in your life.  It's hard enough dealing with the pain but when you have the added worry of caring for a child that takes the worry up the scale big time.

      I am in pain all the time but I am afraid to take pain killers incase they make me have too many side effects.  I lost my brother in August last year and my father in November. Mum is 88 and I have to be on my toes  with her I feel guilty that I can't do as much as I would like to do or used to do for her.  I surpose even though we don't feel strong  what we and so many others on this site are dealing with we really are very strong indeed. 

      You take care and try and look after yourself.

      Sue  x

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  • Posted

    Ive had fibro over 30 yrs now and Amitriptiliye is certainly my savior, it was used for depression - low dose....once the they found out years ago that it was good for started to be used for that and the anti depressant in them is just excellant for us with fibro..ive been on it for about 20 yrs now..never been increased blocks the pain at the nerve end stopping it for from travelling throughout the body..and that way get a really good nights sleep every night...i soooo agree with SLOW RELEASE TABS ,I take SR Panadol 3 times a day too, its just over the counter paracetamol.Osteo Panadol a little strongerover the counter tablet each tab is 60mg I take 2 tabs a day.6 tabs 3 times a day.its excellant...wont build up in your system either....,be blessed Zoe, ,so glad you found SR too..gave a lovely day 😚😚.

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    • Posted

      Thank you for replying.

      It's always so good to hear of things working to help our Fibro friends.

      I did try Amitriptoyine prob not spelt correctly sorry my eyes are not good. But it did nothing for me. Even taking it long enough for it to build up just as u mentioned.

      Well it's all good we have this group of Fibro friends between us all sharing and exploring each others experience.

      I felt so alone when it came to dealing with Fibro as others can't get it completely. I'm grateful to u all and it does help knowing other people who also have it.

      On that note....Thank you to u all for being here. X

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  • Posted

    Hi Zoe,

    Than you for sharing what helps you, hopefully it will bring some relief to others who havent heard or been told about those meds.

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