Medicine for Crohns/ Diarrhoea help and info needed

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Hi

I hope to get some info and help

I have Crohn’s Disease and Ankylosing spondylitis for over ten 15 years now and have taken steroids and Mezavant XL 4800mg  which always have worked, but have caused a cataract. I am now on Mezavant XL 4800mg and weekly Humira injections for 6 month. At first Humira worked completely, but for the last 3 month I now have got again explosive Diarrhoea and bleeding. I spent a minimum of 10 times running to the toilet a day, and get anxious going out and that causes stress and then more flare ups.

I had a SeHCAT Scan for suspected bile acid malabsorption which I have not got and is not my cause for my Diarrhoea.

I also take 60mg and 16mg Loperamide a day but Diarrhoea will not stop, only with Prednisolone Steroids.

Does any body got an idea about medicines like Methotrexat etc to recommend, which I can suggest to my DR in combo Maybe like Humira (which controls the pain and other symptoms) and Methotrexat?

Any info would be most welcome.

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  • Posted

    It is a tough thing to control for sure and I have been on Prednisone for 10 years now, because it is the only thing that helped. There is a biologic called Entyvio, ask your doctor about it and I know that Methotrexate is also used. As a last resort there is Stellara, but it is so expensive that insurance seldom approves it. I am also on strong pain medicine and that helps with cramps and the runs.
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  • Posted

    Wow, when I take tremodal and anti diarrhea I end up being plugged up for over a week. So sorry to hear you going through this, however it does take a day or two for the medication to actually work and I don't get relief right away.

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