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Medrol

Posted , 4 users are following.

onebratt08
onebratt08

Let me preface my question by saying that I haven't been diagnosed with Sjogren's, but I strongly suspect it (many of the symptoms fit, eyes on the cusp of what my eye doctor considers problem dryness, etc). I'm trying to convince my doc to test me or refer me to a specialist.

In a recent doctor's visit, during or maybe on the tail end of a particularly bad flare that lasted for weeks, doc prescribed Medrol - 6 day pack to calm the inflammation. I felt fantastic for those 6 days - slept great, skin cleared up, pain became mostly tolerable, normally low blood sugar seemed to normalize, no dysautonomia symptoms, itchy eyes went away, post nasal drip subsided, stopped a flare of IC, made me feel hormonally good (no painful breasts, good libido). As the medicine has worked it's way out of my system, now over a week, all the symptoms have returned to what is basically normal to me - not quite the flare level, but the normal daily feel like crap discomfort from so many symptoms.

Is this how you all experience Medrol? Feel great while on it then like crap again very quickly? The way doc described it, the Medrol would reset my immune system. I guess I expected the reset to last longer that while I was on the medicine.

If this is not how you all experience Medrol, then maybe I need to consider pursuing another diagnosis (Mast cell syndrome, mitochondrial disease, chronic infection other than Lyme, been down the Lyme road already and I don't have it).

Thanks in advance!

0 likes, 5 replies

5 Replies

  • pam_87693
    pam_87693 onebratt08

    Posted

    I'm sorry I'm not familiar with this drug I'm from the UK and it's not a drug used here. The initial symptoms of Sjögren's we call the sicca symptoms are dry eyes, mouth and in women vagina with possibly thrush. The next problem manifests with swollen glands the can be the parotid glands situated in front of the ears and the submandibular under the chin. This makes your mouth very sore, dry and often feel it's burning. The eyes are gritty and sore. You crave water and in my case ice. To calm this down. I hope this helps. 

     

    • onebratt08
      onebratt08 pam_87693

      Posted

      Hi Pam, it's a steroid, drug name is Methylprednisolone.

      I'm not sure if I have or have had swollen glands, but the past 1.5 years, I've had several dental problems (despite always having good dental habits and a healthy diet), my mouth does burn sometimes and the gritty, sore, itchy bloodshot eyes happen frequently. I can barely wear contacts anymore and if I do have a day in which I can wear them, it can only be for a short time.

      Then just some other symptoms that may or may not be related: chemical sensitivities, alcohol intolerance, muscle and tendon pain, trouble sleeping, menstrual problems (mostly sore breasts half the month and extremely light periods...sometimes just spotting), right hand tremor, orthostatic intolerance.

  • christine_73623
    christine_73623 onebratt08

    Posted

    Prednisolone in new zealand is a steriod that  should only be  used on a 10 day course and then not used,  only people who are extremley ill should be on a drug like this dialy. it effects only last while you are taking it , 

    I have had SS for 22 years diagnoised, and I am 53 now my symtoms were glands like golf balls on the side of my neck, no silvila at all, and i mean none  i drank so much water I thought i was going to drown my kidneys ,  gritty eyes red raw, fatique, that lasted two years and then subsided ,Inflammation is extremley common inSS, going on a no sugar diet helps, nothing can reset your immune system when you have SS, Being on steriods for a long time can make your lungs weak, I was in intensive care tor 11 days and on life support  and nearly died to complications of SS and phumonia, they said although it took a while for my lungs to improve, they still improved enough to be taken off life support,, he then added if i had been on medication, steriod medication my lungs would have been too weak to recover, just something to think about I do not use medication at all I think in the long run it makes SS worse but that is only my opinion here.

    • onebratt08
      onebratt08 christine_73623

      Posted

      Doc said it was dangerous, but he didn't say it was that dangerous! Wow! Lucky you survived!
    • pam_87693
      pam_87693 onebratt08

      Posted

      Hi I've never taken it sorry I think crossed wires! I think you were taling to Christine. 
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