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hi guys. I've had constant aura since Christmas. It's extremely severe and debilitating. The first 2 times I saw the neuro he didn't know what was wrong with me its that bad. I've had all the tests and its definitely that. I've been on topiramate 50 mgs twice day for 12 weeks now and due to increase to 75 mgs next week. The topiramate nearly killed me but things levelled off abit over the last few weeks and I do feel abit better now. I can at least drive short distances and play with my children a little bit. Can't read or watch tv or do many many other things without feeling extremely ill tho 😓
i wondered what Meds/combination of meds other people with hideous aura symptoms have had joy with? I think it's mainly epilepsy stuff?
I really want to be able to look after my 2 and 5 year old!!!! And not feel so ill I'd rather be dead- that would be nice too.
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