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Meds. for daytime fatigue

Posted , 6 users are following.

kellyzboyz
kellyzboyz

I have chronic fatigue, I recently tried Vyvanse and for a few months I felt like a new person. For some reason it just stopped working. I read about a medication called Nuvigil, unfortunately my insurance is giving me a hard time, refusing to pay for it. Has anyone else tried Nuvigil and if so how did it work for you! Thanks, would love to hear others opinions on this medication!

0 likes, 15 replies

15 Replies

  • ImustImust
    ImustImust kellyzboyz

    Posted

    I'd be extremely careful. I tried stimulants when I first realised it was ME/CFS and ran into almighty trouble after a few days.My understanding is that ME/CFS has already sucked most of the energy from the body so stimulants will be sucking out what little is left. IMHO you are asking for trouble taking them.
    • kellyzboyz
      kellyzboyz ImustImust

      Posted

      Thank you, I appreciate your input! Do you know anything about Nuvigil?
  • GeorgiaS
    GeorgiaS kellyzboyz

    Posted

    I don't know about those meds but I tend to agree with Imustimust's post, that taking stimulants can't be a good idea for people with ME as they probably add to the boom and bust cycle that we experience.

    But I take Ginseng and Kola nut (Kola vera or kola nitida) and they help with energy but don't burn me out afterwards.

    • kellyzboyz
      kellyzboyz GeorgiaS

      Posted

      Thanks so much, I will give that a try! So tired of being tired and fighting to try to work just part time.
    • GeorgiaS
      GeorgiaS kellyzboyz

      Posted

      Yes it's awful isn't it. I hope something helps you soon. razz

  • Jk1952
    Jk1952 kellyzboyz

    Posted

    Coenzyme q10 does it for me. Never had any side effects. Been taking it since 1999.
    • kellyzboyz
      kellyzboyz Jk1952

      Posted

      Thank you! I will try CoQ10. What dose do you take?
    • Jk1952
      Jk1952 kellyzboyz

      Posted

      I would introduce 30mg then increase gradually until you find your level. I'm taking 120mg per day. I would take more if I could afford it. If I'm going to have a busy day, (with rest breaks Inbetween of course), I take extra. I don't feel it helps on the day but it helps to avoid 'crashing' the following day. Hope this helps. 

      Ps there's a lot of research about co q10 on Internet. 

  • vicky86416
    vicky86416 kellyzboyz

    Posted

    My daughter takes adderall 10mg in the am, 30 XR lunchtime , 10 mg late afternoon. It setves multiple purposes, fatigue, raises her bp and heels with her brain fog.
    • GeorgiaS
      GeorgiaS vicky86416

      Posted

      I looked Adderall up and it's Amphetamine. Isn't it addictive?

    • ImustImust
      ImustImust GeorgiaS

      Posted

      I would have thought so. It amazes me that Adderall is handed out willy-nilly to children for supposed ADHD
    • GeorgiaS
      GeorgiaS ImustImust

      Posted

      It's very worrying! eek

      Vicky there are alternative ways of getting energy, such as Q10, Kola vera, or kola nitida (commonly called Kola nuts but it's a berry), Ginseng, NADH, which is a supplement.

      It's surely better to think long term rather than short term energy, and long term healing.

      I'd never resort to any form of speed for my ME as it;s not going to heal me and when I stopped there could be a lot of damage from over-exertomg my body artificially and when it's just not ready.

  • ImustImust
    ImustImust kellyzboyz

    Posted

    I asked my pharmacist if she knew anything about Vyvanse and she didn't but looked it up for me. It seems that it is a US drug so isn't licensed for use in the UK anyway.

     

    • vicky86416
      vicky86416 ImustImust

      Posted

      Vyvanse is used for ADD or ADHD.  It can be very effective to help you with brain fog or energy.
    • GeorgiaS
      GeorgiaS vicky86416

      Posted

      Vyvanse is Amphetamine too! Of course it'll help short term but it's false energy, it doesn't heal and it'll take it's toll long term. See my comment to Imustimust above.

      Coffee's similar, a quick fix that does you harm because of the spiking and falling, same with refined sugars.

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